Living with Parkinson's Disease - Meet others & come say hi

@thelasthaunting

I'm not sure that there are any answers as to why some people develop Parkinson's while others don't. Is there anyone else in your family who has/or had PD? It is has been discovered that if you grew up on a farm, you can be more likely to develop PD.

The most important thing right now is to deal with PD treatment and exercise. If you would like more educational information about PD, you will find many articles and webinars on the Davis Phinney Foundation website.

Exercise is an important treatment for PD. Have you been referred for physical therapy to treat your PD?

I was diagnosed with PD October 2024.
the only question that I have is, how did I get the disease? my Neurologist has not been able to tell me in full detail why and how I got it. all that I have been told is that I am in stage 2, and that it will take about 10-15 years before I will show any change to stage 3.

@thelasthaunting
Hello Joel,

I see that you posted on Mayo Clinic Connect in the PD support group. Have you been diagnosed with Parkinson's? Do you have any questions?

@bern7475 I'd love to hear from you again when you find the right medication! Will you post updates as it is convenient?

I am in the process of doing that now. Fingers crossed that we find the right medication/ combination.

@bern7475
It sounds like you need to talk with your doctor about an alternative treatment. There are many meds to treat PD, and if you are having a lot of off-times, it may be a good time to have a conversation with your doctor.

What symptoms are the most bothersome for you during your off times? Is it tremors, balance, or something else?

@hopeful33250 I think that I’m just not on the right dosage. My symptoms return at about 2 hours after I take the c/l. The time released Rytary doesn’t do much better .

Hello @bern7475

I see that you are concerned about your Parkinson's medication. There are many medications used to treat PD. Carbidopa/Levadopa (C/L) is the typical medication that most PD patients begin taking. Is this the med that you are currently taking?

Are you concerned because the medication is not treating your PD symptoms?

@thelasthaunting - hi, Joel, and welcome to Mayo Clinic Connect.

Have you or someone you care about been diagnosed with Parkinson's? If so, what are the major symptoms you or they experience?

@bern7475 - what medication are you taking right now? What concerns do you have with it?