Living with Parkinson's Disease - Meet others & come say hi

Hello @tower, and welcome to the PD support group on Mayo Connect. I appreciate you reaching out on behalf of your husband to get information, as well as encouragement, as you journey with your husband through the maze of Parkinsonian symptoms. It can be a confusing journey, and sharing the journey with others is important.

From your two posts, it appears that his symptoms are increasing. Share, as you are comfortable doing so, a little about what symptoms led to this diagnosis and which symptoms are the most bothersome to him now. For example, when I was first diagnosed, I had balance problems, one-sided weakness, foot dragging, and a very soft voice.

Have any medications or physical therapies been helpful to him?

My husband has dropped neck for the past 2 months. Are there any treatments for this?

Hello, my husband was a year ago was diagnosed with Parkinsonism. Since June we’re seeing many symptoms show up.

Welcome, @barb1922,

I see that you have been recently diagnosed with PD. I'm glad that you found this online support group. A diagnosis of PD is often hard to fathom, isn't it? When I was first diagnosed, I was having balance problems, foot dragging, one-sided weakness, and a very soft voice. The symptoms had been progressing over several years. Medication and regular exercise helped to control my symptoms.

I look forward to hearing about your journey with a PD diagnosis. What were your original symptoms? Have you started any medication or other therapies? What questions or concerns would you like to share?

First of all, rember that you're our own advocate. Learn everything you can online...don't settloe for one description; dig as deep as you can: Mayo, Cleveland Clinic; AI; books from MJFox Foundation, from Phinney, from JAMA. Search for Parkinson's groups and Local Branches...there's lots out there, but you have to fid it yourself, then bring it up to your/his Motion Disorder Neurologist. And there afe plenty of symptoms/side effects/parkinsonisms (Whatever they want to call it) that you need to know about: neurologistd will only treat Their specialty. Plan on accruing multiple doctors who treat the individual s/s/p 's that a MDS(Oh, mentor, comment o that, please)

I have recently been diagnosed with Parkinson's and interested in joining support group.

Hello @macowen,

I want to join @sillyblone in welcoming you to the PD support group on Mayo Connect. As she said, this is a place where you can share your concerns and receive support. When my PD symptoms began (many years before the actual diagnosis), I had balance problems, foot dragging, a soft voice, and one-sided weakness. Once I began treatment (carbidopa/levodopa) I noticed a marked improvement. Medication, combined with regular exercise, is an important factor in delaying the disability of PD.

I look forward to hearing from you as you share a bit about your husband's journey with a PD diagnosis. How long ago did his symptoms begin? Has he begun medication or physical therapy yet? What do you need to know?

Hello,
I just wanted to say welcome to the group. My spouse has had Parkinsons since 2013. It began with small handwriting and a fall at work. He was diagnosed with tremors . My brother is 67 yo in hospice with Stage 5 Parkinsons and Lewy Body Disease.My Dad died from complications from his Parkinsons in 2018. We received the official diagnosis 12 days after my Dad died. I cannot began to tell you all that has happened through the year's. He has Stage 4 + at this time. What did they say and what are you familiar with? Symptoms? I don't want to feel that you cannot share as it is very caring and supportive group. Please ask me anything that I have done with my family members. 🫂 🤗

New to this group because my husband has just been diagnosed with Parkinson’s this week. I want all the support and information I can get to help my husband in this journey.

Welcome! My name is Cheryl. I am a retired nurse. I’m 66 years old and I was diagnosed with Parkinson’s disease in June 2022. This is a very informative group so ask any questions that you may have with no question is too small or too stupid to ask cause if you don’t ask, how do you ever know?