Living with Parkinson's Disease - Meet others & come say hi

Hello @larias1955, and welcome to the PD support group on Mayo Connect. From your post, it sounds like PD is a recent diagnosis for you. Is my understanding correct?

You ask how to deal with anxiety related to PD. The best way to relieve anxiety is to be as proactive as possible. My suggestion would be to have an evaluation by a movement disorder specialist who can suggest medications to control the most troubling symptoms. There is also specific physical therapy that can reduce PD symptoms.

I look forward to hearing from you again. Please share what you have done so far to treat your PD symptoms.

How do others deal with Parkinson's anxiety

@jonimac52 - welcome. I'm glad you have a diagnosis and know what you are dealing with.

Exciting you've regained some ability to stand and walk!

How are you feeling about this still relatively new diagnosis? Are you experiencing any side effects from the medications so far?

Hi my name is Jonimac52 . I am 73 & was diagnosed with light Parkinson’s first of Jan this year. Have not been able to walk since November of last year. I’m on carbadopa/levadopa 25/100 and currently see outpatient therapist twice a week. With the meds and therapy I’ve regained some ability to stand and walk a few steps assisted. I have problems keeping my blood pressure regulated so getting up and down can be tricky as it causes orthostatic hypertension. Anyone else experiencing the same?

@jatonlouise
Well said! Actually I loved English in school and college. I actually met my spouse in my High School English class. That was when I was 15yo. Older and sometimes wiser. 💕🫂

Many colleges have stopped making English classes a requirement for STEM
degrees, using the argument that there's so much techie stuff that they
haven't time for silly foo-foo classes like English. So, these kids
graduate with their heads full of knowledge, but they are incapable of
writing a coherent English sentence. And they are hired by companies like
the one I worked for. These kids were gyped by their educators because no
one realized that, while it's fabulous that they have all this valuable
information between their own ears, it's totally useless if they are unable
to put this information between the ears of OTHER people. And the way that
we do that is language. While explaining something face-to-face is useful,
it is not sufficient ---- we also have to put it in writing so more people
can have the benefit of all the things you have learned. So, much of my
work involved teaching our brlliant young people how to write, and brutally
pencil-whipping what they put down on paper so that it could be understood
by someone who may not know all the things they knew. So sending all my
typos out into the world can be a tad more distressing for me than it is
for normal folks. But I am congenitially unable to abstain from putting
words -- lots and lots of words--together and sending them out into the
world in the hope that they can be helpful -- or at least amusing -- to
others (because making folks chuckle a bit is also helpful, at least for
me ).

@lisalucier
My spouse takes naps more then before. I would say in the last couple of years. He has been doing PT and he is more alert. But still falls because he either forgets or he does something careless. His biggest thing lately is his anger. I know it is the disease process, but it certainly is not my fault either. I have gotten used to him doing the blame game. I try to stay quiet..but hard sometimes. I have so much empathy in my whole being and would take this condition from him if I could. I might be worse. I still do not know if I might have Parkinsons as my Dad and brother have it. I am concerned for my children and grandchildren. I know this was off the subject, Thank you for your input and your sharing. I really do know that this site helps us all to deal with the conditions and possibly help someone else.🫂

@jatonlouise
Please don't feel bad about your comments. I have had to retype several of my comments over. Getting used to how things works on this platform takes time. You can share or respond. I myself am not looking for typos. I make them and so do other's. I refuse to use AI to type for myself . I don't trust it at all. Take care and keep sharing.🫂

I've reached the same conclusion - write it in Word and cut and paste it
into the post. Plus I have a friend who volunteers for a PD Support group
in Waco TX and I can recycle my pearls of wisdom . 😉 For her, i've been
focusing primarily on pump- related info (although the prospects don't seem
as good as they are in Germany. My insurance covers my meds for the pump -
$6,000/month- 100% but given the battles I've had with my health insurance
to get them to pay my $100 for my son to have his teeth cleaned or have
them pay for my hearing aide in accordance with the policy, I don't have
very high hopes that they'll be any less recalcitrant certainly given
today's climate. Sigh
..

Stay sane and have a lively day!

@jatonlouise, technical issues can be frustrating. You can make the font larger. How to make the font larger depends on the type of device you are using to access Mayo Clinic Connect, e.g., phone, table or computer.

I'm sorry to hear that you sometimes lose a message before it is complete. Your messages are not too long and there is no time limit. I wonder if you might be hitting another tab or window inadvertently which causes the message to be lost. Other members have shared that when they have a detailed, thoughtful message, they will first write them in a Word document or in Notepad and then paste the message into the discussion.

Anyone having technical issues, can get additional help by sending a message here: https://connect.mayoclinic.org/help-center/#get-technical-support