Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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@carolyn37 I've been on various doses of Gabapentin for the past two years, and cannot say that it helps in any way, certainly not for pain. And I really don't like the way it interferes with my mental process.
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We're all different, aren't we … gabapentin helped me, calmed my nervous system so it didn't cause so much pain, but as my nervous system continued dying I got to the limit of how much gabapentin my doctor would prescribe so he sent me to a neurologist who prefers Lyrica. The first day, it made me sleepy but it doesn't any more. I'm taking 150 milligrams twice a day but it's not working as well as gabapentin did. I took Lyrica CR for 3 months but my insurance company won't pay for it any more. It didn't work as well as gabapentin either. I will see my neurologist as soon as I can and ask what to do. Peggy
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Hi carolyn, gabapenton did not work for my neuropothy but lyrica lessons the intense burning sensation. Cannibus cream did nothing. Also riding a stationary bike hard for 20 minutes really helps, im guessing it could be blood flow. Rob
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Im sure you know prices are much cheaper than other pharmacies. Rob
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Another little hint , at night if i cant get to sleep, the worst time for me, i put my feet in a pan of ice and water for maybe 15 minutes and that gives some relief to go to sleep. Rob
Liked by John, Volunteer Mentor
@lioness I think you are asking about the Dolphin Neurostimulator that is a device to send an electric current (between 2 devices) which blocks the neurotransmitters (temporarily) and reduces pain. My physical therapist used this on me, and I would have improvement for about a week, not totally pain free, but less pain and less muscle spasms being caused by the spine problem. This was when I needed spine surgery and couldn't find a surgeon who would help me. It is a weird sensation when using it, and there were a few times I felt queasy, but it reduces pain without drugs. Here is the link about it.
https://www.dolphinmps.com/
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@lioness
@carolyn37 Everyone is different for me it wasn't helpful but it may for you ,ask your Dr.
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