Living with Neuropathy - Welcome to the group

Posted by Colleen Young @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

the length and value of the life of a person living with Neuropathy

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@fonda

Believe me the two sensations can co-exist. My neurologist explained it to me but I didn't understand even then.

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Interesting! It doesn't make any sense to me at all, but having said that – I hope I never have the experience to help me understand 😉

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@rwinney

Good to know, thanks. I'm beginning Medicare in 2020 and Neuro said no way will they cover IVIG without a major fight. All so interesting. Time will tell.

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Dang….
Tell your doctor to fight….it is worth it

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@mcgatt

the length and value of the life of a person living with Neuropathy

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Hello @mcgatt, That is a very heavy statement that I'm not sure even the worlds smartest doctor could answer. There is another discussion that you may want to participate in here:

> Groups > Just Want to Talk > Just Want To Talk: Rational Thoughts about Mortality and Time
https://connect.mayoclinic.org/discussion/just-want-to-talk/

Here is an article that I posted in the above discussion that provides some thoughts.
20 Brutal Truths About Life No One Wants to Admit: Time is your most valuable asset–you need to prioritize how you spend it.
https://www.inc.com/matthew-jones/20-brutal-truths-about-life-no-one-wants-to-admit.html

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@mcgatt

Good morning

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Good morning! Another day of nerve pain, no sleep, and so tired of hurting everyday! Will it ever end! Merry Christmas to all in pain,I hope it changes next year!

Sent on my Boost Mobile Samsung Galaxy S® 6
——– Original message ——–

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@resawaller

Good morning! Another day of nerve pain, no sleep, and so tired of hurting everyday! Will it ever end! Merry Christmas to all in pain,I hope it changes next year!

Sent on my Boost Mobile Samsung Galaxy S® 6
——– Original message ——–

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Try red Kratom! Have started it for neuropathy

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@ginthert

Dang….
Tell your doctor to fight….it is worth it

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Thank you for your advice.

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@resawaller

Good morning! Another day of nerve pain, no sleep, and so tired of hurting everyday! Will it ever end! Merry Christmas to all in pain,I hope it changes next year!

Sent on my Boost Mobile Samsung Galaxy S® 6
——– Original message ——–

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Try googling: ultrasound therapy treatments for pain and see if you want to try ultrasound treatments.

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@maryv449

Try googling: ultrasound therapy treatments for pain and see if you want to try ultrasound treatments.

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Didn’t work on my neuropathy! Insurance wouldn’t cover it!

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@johnbishop

Thanks @steeldove – I think this is the research you mentioned.

Researchers Explore A Drug-Free Idea To Relieve Chronic Pain: Green Light
https://www.npr.org/sections/health-shots/2019/12/15/787138928/researchers-explore-a-drug-free-idea-to-relieve-chronic-pain-green-light

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My daughter, who has suffered from migraines for years, has ordered green lights for herself and for me. I'm eager to see if it helps at all with neuropathy, and will post updates here.

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