Living with Neuropathy - Welcome to the group

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

@birdierobin

My uncle suffers from feet neuropathy too and he has even propped his feet up on the wall I know it sounds crazy but he turns around in the bed and puts his feet up on the wall and that eases the pain off some

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Hell, will stand on head if it helps!

Liked by Leonard, rwinney

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@birdierobin That's not crazy, Robin. Feet-up-the-wall is a yoga pose and it's very effective.

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@birdierobin

My uncle suffers from feet neuropathy too and he has even propped his feet up on the wall I know it sounds crazy but he turns around in the bed and puts his feet up on the wall and that eases the pain off some

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This definitely helps to increase circulation and blood flow. I learned about it last year from another Connect member.

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@steeldove

@birdierobin That's not crazy, Robin. Feet-up-the-wall is a yoga pose and it's very effective.

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How do I get back up? Lol—- Joke!

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@steeldove

@birdierobin That's not crazy, Robin. Feet-up-the-wall is a yoga pose and it's very effective.

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I didn’t know that! Glad it works!

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@wilcy

How do I get back up? Lol—- Joke!

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Lol

Liked by Leonard

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Good morning! Just turned 70. Doc says I'm in good shape but age creeping up. Actually my neck started cracking a few months ago…I mean a lot during the day. They both said it is very common. (bubbles, etc!) Not pain just annoying…Had X-Ray, MRI…yes there is some arthritis, and some movement in C-3,C-4(which I know little about!)…But basically I found out from the specialist and my GP that maybe some therapy, strengthen neck muscles, a few exercises(boring), posture…and see. Trying to figure out if there is anything missing??? Actually didn't know where to post?
Thank you, JB

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@wgatap21

Good morning! Just turned 70. Doc says I'm in good shape but age creeping up. Actually my neck started cracking a few months ago…I mean a lot during the day. They both said it is very common. (bubbles, etc!) Not pain just annoying…Had X-Ray, MRI…yes there is some arthritis, and some movement in C-3,C-4(which I know little about!)…But basically I found out from the specialist and my GP that maybe some therapy, strengthen neck muscles, a few exercises(boring), posture…and see. Trying to figure out if there is anything missing??? Actually didn't know where to post?
Thank you, JB

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Hi @wgatap21, I think you ask a great question. I'm not sure if this is a better place to post but since it's a collection of exercises and I didn't see much else related to your neck making a cracking noise during the day. I had a friend that taught AARP driving classes for seniors and he always added some great head an neck stretches and emphasized we should be doing them daily to help us with our driving and being able to turn our heads in different directions to see what's going on around us. This might be a good place to post…

> Groups > Healthy Living > Strength training: How-to video collection
https://connect.mayoclinic.org/discussion/strength-training-how-to-video-collection/

Also, I found this video on Mayo Clinic's site for: Neck stretches for the workplace
https://www.mayoclinic.org/healthy-lifestyle/adult-health/multimedia/neck-stretches/vid-20084697

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THX…can't hurt to post…You never know.

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@wgatap21

THX…can't hurt to post…You never know.

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@wgatap21, a funny thing just happened as I was reading your post. I started doing the exercises that my friend taught me at the AARP safe driving class and snap, crackle, pop – I felt my neck pop at the base of my skull…yikes!

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Just weighing in after a couple of months away from the Connect….I agree that Legs up the Wall is a wonderful exercise for calming the mind and re energizing the body through recirculating blood. However, because it is an inversion posture, it is not good to do if you have sinus infections or brain or eye bleeding. If anyone wants a short tutorial about getting into and out of Legs up the Wall let me know or just pull it up on U Tube.
Also I really relate to the sudden cervical condition mentioned earlier by wgatap21 with necking cracking and (for me) arthritis in C 6/7, which has caused tremendous pain. I'm actually having a cortisone shot in my neck this Friday for pain relief as I found injections in my lumbar spine to bring significant relief. ha ha John about the snap, crackle and pop… which I too understand is more annoying than it is any medical concern.

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Thx…avoiding the shot! Hoping for a better solution! Good luck and feel better

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@jimhd

@catro
I'm sorry that I didn't see your message sooner. Have things improved over the past couple of months?

I have similar symptoms, Catro. Similar in that as soon as I lie down or lean back in the recliner with my feet on an ottoman, they start in on burning pain. My daytime pain level is very unpredictable. My lowest pain is at 2, but it will go up to 8 fairly quickly. My feet and ankles hurt when I'm standing still, when I'm driving, and when I'm walking.

The pain is sometimes lessened by wearing loose socks. Other times I have to be barefoot because the socks (and anything else) cause pain by contact.

In bed, I have a pillow to keep between my legs so they don't touch each other, and another pillow under my feet. I have a blanket lifter to keep the bedding from touching my feet. I sleep on my side usually, though I have to lie on my back and prop up my head so I don't feel suffocated and have a panic attack. Sometimes I can rest my feet on the feather pillow, but sometimes I have to arrange my feet so only the heels are on the pillow and the rest of my feet hang off it. If that doesn't work I dangle them off the edge of the bed. Wherever they are, I can't let them touch each other. Wherever they make contact, there will be pain.

I use lidocaine cream on the burning areas, to numb the pain long enough to get to sleep, or sitting in my recliner, or driving. It helps, but it's very much temporary.

Are there certain things that start your pain? Can you find a position of comfort, even if it's just for a short time? Can you tolerate shoes? Have you found a certain shoe you can wear?

Each of us in these discussions about neuropathy are always on the lookout for new things to try – things that have helped others may or may not work for you or me.

I have sleep apnea and use a Bipap machine. It improves my sleep health enough that I don't wake up every night because of pain. Sleep's an important contributor to overall health. Before I was diagnosed with sleep apnea I snored a lot and stopped breathing, so I was chronically tired from sleep deprivation. What a change a CPAP machine made in my life. Sleep is good.

What things have helped you? If you could share those things with us, it could help a lot of people. I suppose you've read some of the things people have posted here. I hope that we can offer you some support and ideas.

Jim

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I find relief by sleeping with my feet up. I'm talking like on a 90 degree angle.

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@johnbishop

@wgatap21, a funny thing just happened as I was reading your post. I started doing the exercises that my friend taught me at the AARP safe driving class and snap, crackle, pop – I felt my neck pop at the base of my skull…yikes!

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I hope it was just a sound and not pain, @johnbishop!

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@hopeful33250

I hope it was just a sound and not pain, @johnbishop!

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No pain, just a funny pop sound

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