Living with Neuropathy - Welcome to the group

Hi @yoda, too much b6 is definitely a bad thing. There is quite a bit of information out there on b6 toxicity:
http://www.easy-immune-health.com/vitamin-b6-toxicity.html

John

I've heard a lot of different folks have been helped by a compounding pharmacist that can mix the CBD and THC from cannabis so that you get pain relief without the loopy feeling that some fear...but I'm not sure it's readily available everywhere. Here in Minnesota you have to be approved by your pain management doctor and get on the state's list - more info here:

I think one of the big benefits is it is a topical and you get to rub it in where it hurts and get pain relief without what has been described as "foggy brain". In Minnesota there are only two compounding pharmacist - the Mayo Clinic Rochester and the Lake Elmo Pharmacy - http://www.lakeelmopharmacy.com/pain-management-2.html.

It is most definitely a nasty, unforgiving disease. Wishing for a pain free evening for all my neuropathy friends. Psst...If you don't like Ben Gay, try Life-flo Magnesium Lotion - has a great smell and it is one of the best moisturizing lotions I've used on my feet. Nope, won't help with the pain or the numbness!

John

Hi@medic7054 where do you live to be able to get it?

Useful info—thank you, John!

Guess what guys, I have POEMS blood plasma disorder that causes neuropathy in my hands and feet..I've found that Vicks Vapor Rub has a lot of uses..

@parus

I have tried so many drugs, I can't remember them all. Right now I'm taking Cymbalta and Morphine sulfate contin, and I use Lidocaine cream to numb the pain, mainly in my feet. I think I took Nortriptyline, Tegretol, Oxycodone, Capzasin, and others. Acupuncture was suggested but I can't afford it. Now, since I had a spinal cord stimulator implant, the pain in my feet is around 80% better. Generally, they don't hurt in the morning, but gradually hurt more as the day progresses.

Jim

Hi @johnbishop, do you know the strengths of b1, b6, and b12 that someone should be taking that have Neurppathy.

Hi @mikween, I really don't have any medical background or training to give advice. I can share what I've found out through my own research. I take a high amount of B12 (2 ML - about 40 drops of lipsomal liquid B12 per day) as part of a group of supplements but it is water soluble and not a problem. B1 I don't take other than what I get through food. B6 is the one to be careful of dosage - easy to get B6 toxicity and hard to test for (my understanding).

Here are some links I've found on Mayo Clinic on dosage:

General vitamins dosage -
http://www.mayoclinic.org/documents/mc5129-0709-sp-rpt-pdf/doc-20079085

Vitamin B1 - Thiamin
http://www.mayoclinic.org/drugs-supplements/thiamine/dosing/hrb-20060129

Vitamin B6 -
http://www.mayoclinic.org/drugs-supplements/vitamin-b6/safety/hrb-20058788

Vitamin B6 Toxicity
http://www.easy-immune-health.com/vitamin-b6-toxicity.html

Vitamin B12
http://www.mayoclinic.org/drugs-supplements/vitamin-b12/background/hrb-20060243

Hope this helps...John

@johnbishop Thank for sharing this info as so many people do not realize the damage some supplements can cause-even neuropathy.

Kudos for helping to educate others!!!

Thank you for this extensive research. Have you heard that alcohol (for example, beer and whiskey) is toxic for neuropathy? I have heard that some medical professionals believe it will make neuropathy worse.