Living with Neuropathy - Welcome to the group

Yes, burning feet neuropathy almost runs our lives. We tell drs’ & they don’t know what to do.
Traveling for me isn’t possible as I have to be able to cool my feet down.
I found ice socks from Amazon helps stop burning at bedtime. I have 4 pair & as they thaw out, I change out for another frozen pair. Some brands are flimsy & can rip so I have my favorites. Also keep a large water bottle frozen & during daytime I roll the bottle under my feet.
Hope this helps a bit.

I usually use a fan on my uncovered feet to reduce the heat, warmth, and swelling in my burning feet. It helps as I don’t like the side effects of different meds to try. Some of the supplements I’ve tried cause me to itch terribly as I have neuropathic itch. I’m thinking of trying LDN (low dose naltrexone) to see if it will help. I empathize with what you’re going through.

Where did you buy the ice socks? I’d like to try.

Amazon. I have both of these socks. You can’t walk around when wearing or they’ll tip.
I hope it helps you.

Your doctor is an idiot and not specialised in pain. I have similar symptoms and have tried all the conventional pills. Am now consulting a Homeopath and trying to get hold of creams - Venagel by Vogel trying for this weekend. Pain is driving me mad and recent heatwaves - I'm in the U.K. have made pain worse - . There are many pills in conventional medicine - see a neuropathic specialist - but they stopped me thinking and gave me brain fog. I've also tried acupuncture to no avail. In the evening I sit with feet in a bowl of very cold water, helps a little, and take codeine, which gives me 3-4 hours sleep but severe constipation (been prescribed Laxidol which works). Keep trying. Good luck. barb.simpson

Thanks so much for the ice socks info. I’ll order some from Amazon to try.

Hi I am new to this group. I have a strange form of neuropathy that stemmed from nutritional deficiencies that happened in 2012 when I had a virus and painful cramping and then all the food came through me undigested. My feet were blue and I lost over 35 pounds but the gastrointestinal doctor did nothing to help me get nutrients. She couldn’t figure out what it was but in retrospect I am very frustrated because by not getting any nutrition to me she caused this to happen to me. I have nutritional neuropathy that got better after 7 a half years but ever since I received my second COVID vaccine and had scurvy from malabsorption in 2021 the front of my lower legs starting at,the knee and going down the front and inside of each calf I have hot skin and vasodilation. My legs are bright red and so painful in the front but normal and while skin in the back. I have one doctor out of state who is a vitamin guru but he is very busy and not in my city. We communicate by text.

I have damage to my autonomic nerves and it can improve if it is treated quickly. I got better initially and then COVID and a crazy misdiagnosis and hospitalization caused me to have a relapse. Does anyone else here have nutritional neuropathy or neuropathy brought on by nutritional and vitamin deficiencies z.

I use fans and have been for years. I sleep on top of the bed and don’t cover my legs or feet from the thigh down I use Cerave cream that is cool on the soles of my feet.
I had a wonderful doctor but he lived and had two hospital appointments in my state and his home state. When COVID started they wouldn’t let him travel back and forth so I lost him.

Here’s something we tried that really helped me very much with the soles of my feet.
It’s a cream called Biafine. In the US it’s sold by prescription as a “ medical device “ because it’s used by people who have had radiation treatments and have damaged their skin.
But there’s a company in France that takes US credit cards and they change only 30.00 for a tube that costs 82.00 here. You don’t have to use much and I honestly swear that this cream helped restore the feeling in the soles of my feet and stopped the burning
Company is called Avibon but you can Google buy Biafine in France.

I took LDN and it did not do much for me but with neuropathy it is different for everyone so please give it a try. My specialist touts it I had no negative side effects but it did not help because I have erythema and the front of my lower legs are bright red down the front and inner side of each calf starting with the iinside of my calf’s. The back side of each leg is “ perfect “ good luck to you

I am reposting my response to another member below because I see they posted 14 months ago and you are having a current conversation
Please try this out and yes we have to educated the doctors for sure!

Here’s something we tried that really helped me very much with the soles of my feet.
It’s a cream called Biafine. In the US it’s sold by prescription as a “ medical device “ because it’s used by people who have had radiation treatments and have damaged their skin.
But there’s a company in France that takes US credit cards and they change only 30.00 for a tube that costs 82.00 here. You don’t have to use much and I honestly swear that this cream helped restore the feeling in the soles of my feet and stopped the burning
Company is called Avibon but you can Google buy Biafine in France.

I took LDN and it did not do much for me but with neuropathy it is different for everyone so please give it a try. My specialist touts it I had no negative side effects but it did not help because I have erythema and the front of my lower legs are bright red down the front and inner side of each calf starting with the iinside of my calf’s. The back side of each leg is “ perfect “ good luck to you

Here’s something we tried that really helped me very much with the soles of my feet.
It’s a cream called Biafine. In the US it’s sold by prescription as a “ medical device “ because it’s used by people who have had radiation treatments and have damaged their skin.
But there’s a company in France that takes US credit cards and they change only 30.00 for a tube that costs 82.00 here. You don’t have to use much and I honestly swear that this cream helped restore the feeling in the soles of my feet and stopped the burning
Company is called Avibon but you can Google buy Biafine in France.

I took LDN and it did not do much for me but with neuropathy it is different for everyone so please give it a try. My specialist touts it I had no negative side effects but it did not help because I have erythema and the front of my lower legs are bright red down the front and inner side of each calf starting with the iinside of my calf’s. The back side of each leg is “ perfect “ good luck to you