Living with Neuropathy - Welcome to the group

Hello @chloebusybee3, Welcome to Connect. When I see neuropathy supplements along with words that make them seem like a magical cure I always think of a line from the movie Forrest Gump..."Run Forrest, Run!". There are supplements that are known to provide some relief and help with neuropathy symptoms but I think you really need to do your own research along with having a discussion with your doctor when taking supplements for any condition.

The Foundation for Neuropathy has a lot of helpful information on learning more about the condition and what can help. Here are a few topics:
-- Vitamins and Supplements for Nerve Health: https://www.foundationforpn.org/vitamins-and-supplements-for-nerve-health/
-- Living Well: https://www.foundationforpn.org/living-well/
-- Therapies: https://www.foundationforpn.org/therapies/

Can you share a little more about your diagnosis and any treatments you have tried?

I tried all the Meds...hated them all

I'm not taking anything other then working on the "What" is causing it...
Somethings that are triggering it ..I think
Chocolate
Alcohol
Its weird but there days when i dont have pain at all and then there days i do
Something is triggering and im going to find the solution without the drugs that dont work...only numb the problem
Ive tried R- ALA... and other herbs/vitamins and some even make it worse like nitric oxyide...anything that promotes blood flow
At this time..i work ..like mowing when its bad enough i stop get off my feet..mostly lay down for 15min or so and then im ready to go again..
Luckily my job gives me opportunities to sit here and there and it doesnt effect my job.
So im digging...trying..
I do beleive mine is COVID related

Good luck to you I hope you find the solution with the nerve pain, are you seeing a doctor? Just keep doing what you are doing, stay active. I don't take herbs but I drinking ginger/green teas as I read it in Google that these tea help to alleviate nerve pain. I also apply Magnilife DB Nerve Relief roll-on, you can buy it over the counter and I think it helps me for a temporary relief.

Hi. another PN patient here....just curious, what leads you to believe your PN is covid related? Timing of onset? I've had symptoms since well before covid....(had it twice but did not associate any change in PN with covid)
thanks!

They are WONDERFUL and the only shoes I can wear anymore. They now cost almost $200.00, however, I buy the "Relaxed" sandal and they last for years, even though I walk a mile or more everyday.

Yes, timing of course it could be due to maybe drinking a bit more during the lock down..
Stress related...
Who really knows...
Ive also tried alot of the creams and roll-on's..tempory relief ..
But ive just learned to deal with to the point i need to give my feet a break for a few minutes...than i can go again for a little while.

thanks for the reply. I am getting good results from the "blueprint" nutrition program, but it seems I am in the minority on that.... My PN does not include much pain, just numbness and tingling...perhaps we caught it in time, I dunno. I think mine was definitely worsened by my drinking....(long story, sick wife who ultimately died, yada yada), but I have since given up the booze. Have a few beers OCCASIONALY instead of every day.
anyway, yeah, it sucks; mostly not being able to cure it. I know many have it much worse than me, so I am thankful... but the treatment I am using is time consuming, which I dont mind as long as I'm seeing results.

Sorry to ramble. Good luck in your pursuit of relief!

I first understood I had neuropathy in 2012 after my lower back operation. I did not understand what the problem with my feet was. I thought that the surgery had been the problem. The surgeon said my problem was neuropathy. He prescribed gabapentin at a high dose, and didn't tell me anything more. When I complained to my G.P. she did tell me that it was not curable, and prescribed two other medications. I don't remember their names, but it really messed my head up. After that my Neuropathy was not my biggest concern. I was in a fog. I couldn't make decisions and was just lackadaisical all the time. After a couple of weeks my wife couldn't take me like that anymore. My GP stopped the two meds and keep the Gabapentin. That made my head much better, but neuropathy just as bad. Eventually I tried stopping the Gabapentin all together and it was definitely worse. I went back to it, but ended up with a much smaller dose. (one 300mg capsule 4 times a day.). It has gone up my lower legs, but I am 80 years old and I have decided I will handle it. Bob

Neuropathy only of toes (following major spinal realignment) is increasing challenge, limiting walks or gym classes to one hour max. 200 mg gabapentin at night initially helped to avoid the problem waking me up, but I’m now up to 300 mg nightly. It has over past year contributed to weight-gain/bloating and even daytime fatigue (still on Mediterranean diet and gym classes 5-6 days a week. I just read some of your discussion on gabapentin and possible topicals and look forward to following your thread in the future, Vicki

I am 81 years old, I have diabetic neuropathy. On July 30, 2025 I had my second Total Knee Replacement, I’m in week 3 of rehab. That’s why I want to talk about the numbness in my feet. Part of my rehab requires me to wear an anti-clotting devices at night. I wear them on my lower legs and they inflate and deflate on a prescribed schedule. I have noticed the numbness has decreased as I wear them. Now this is my second TKR, the first was January 22, 2025. That’s when I first saw this decrease. I was skeptical to share this phenomenon but I dare not keep it to myself. The numbness decreases when I wear these devices. When my rehab with the knee was over I continued to wear the devices with the same results. So, why did I stop.
Honestly, the devices infuriated me because I also have incontinence. And in the middle of the night the cords would intangle my legs when I needed to go to the bathroom. So I quit. But now that I’m doing it again I had to share my discovery. My hope is some doctor will see this and run with it. TIL then, bless to all.