Living with Neuropathy - Welcome to the group

@andyjustin, It's OK to vent, sometimes that is all we can do to offload some of our struggles and pain. Not sure if you have ever tried meditation but there are other members that have mentioned it as being helpful. Here's a YouTube video example that might be helpful - Guided Meditation for Chronic Pain - https://www.youtube.com/watch?v=Fdr-jK4XrrM.

I understand the need to vent. I also don't know what each day will bring me. Add that to the lack of support from medical people, it's a struggle. I have started PT to try to strengthen my legs. But the lack of understanding from others is hard. It's been good to be a part of this site and know I'm not alone.

It all before I got autonomic neuropathy I never even heard of it now I live it every day most of the days I don’t have to vent. My medication seems to work pretty good although there is a pointed every day I do feel symptoms strangely enough my symptoms come and go, and in my wildest dreams, I like to pretend it’s in remission. Well it’s not it’s here to stay luckily, I have not lost the ability to use all my body parts and when I say that I mean, feel all of them and go about my daily activities I still like sugar I still like coffee and the occasional joint I don’t drink anymore eat healthy, live healthy, and hope for the best. I am on a new protocol which I must say has given me the ability to lower my dosage of medication to be clear instead of taking 15 to 1800 mg of gabapentin and 100 mg a pregabalin. I am very stable at 1500 and 100 mg of pregabalin I am sleeping much better and I’m not constantly chasing the pain. It’s a horrible insidious condition but we do the best we can hope physical therapy helps you but do whatever it takes so that you can get through your day all the best.