Living with Neuropathy - Welcome to the group

For some reason I can't remember hearing of alpha-lipoic acid as a possible treatment for PN pain. Has it worked at all for you?

I even had Alpha Lipoic
Acid infusions arranged for me by my naturopathic doctor. I think the point is more to support nerve healing rather than just pain reduction. I believe it helped though I can't prove it because there is no way to know how much I would have improved without it.

Thanks for the hug.

"Finally, a diagnosis" certainly applies to me.
About 12 or 13 years ago I first noticed a slight tightening in my thigh muscles. I was still walking 2-3 miles a day for exercise. I used to walk faster than almost everyone else. Gradually, I found when I walked with someone else, I started having problems keeping up with them. I also have bad arthritis and have had several joint replacements. With each doctor I saw I mentioned the increasing tightness/weakness in my thighs. No doctor or therapist had a definitive answer. My walking kept getting harder and harder, yet no medical providers could tell me what was wrong with my legs.
After moving to a new town, I got a new doctor. She not only listened to me, she referred me to a neurologist. He examined a nerve conduction study I'd had done, he tested my strength and pain sensitivity, and spent a lot of time examining all my medical/hospital records. His conclusion: Axonal Peripheral Neuropathy. "Finally, a diagnosis!"
My present doctor sent me to a physical therapist who specializes in these problems. I went to her for several months. She also gave me a set of exercises, which I try to do every other day. They're not a cure, but they do seem to have slowed down the progression of the problem.
I'm still able to walk, though very slowly and not very far. For longer walks outside, I use a walker with a seat, so if my legs give out, I can sit down and rest.
I don't know what the future will be, but it is reassuring to at least know what is wrong with me. It's also reassuring to know that others have the same problem, and I can read about how they are coping with it on this website.

Thanks to everyone who shares their stories I have had central pain or thalamus pain syndrome
since two months (approx) after my stroke in 2018. Have tried
pain management specialist, a dedicated neurologist, and anyone else who could help
No medications, including med marijuana, acupuncture, PT,
meditation , etc have had any effect on the pain. Wondering if their are any open studies being conducted, related to CPS
Thank you