Living with lung cancer - Introduce yourself & come say hi

Great idea!!

Hang in there it will get better. Stretching and yoga has helped me a lot. Also, Whenever you are in the shower or a hot tub do a few side stretches.

Fascinating. I understand it’s a relatively rare type of adenocarcinoma. I’m still dealing with rib and diaphragm pain since my surgery. Sadly, Gabapentin and I didn’t get along

Hi Pam, I also had a mucinous Adenocarcinoma in the LR lobe. It was removed 7 months ago. I had robotic surgery. It was tough for awhile after surgery felt like I had a bra on 3 sizes too small. Gabapentin and lidocaine patch helped a lot. You are the first person I’ve come across with a mucinous Adenocarcinoma.

Good luck to you and your husband as he goes through that chemo protocol. As I stated previously it can be a challenge but as a team you can get through it (my wife was indispensable when I went through my chemo treatments). He will learn how to control the chemo symptoms through the medications that he will receive and make sure you share all the symptoms with the oncologist at every pre infusion check-up.

Thank you for the the response, yes he did get his PET scan done, it didn’t show any cancer other than his left lobe.Tumor was was sent for biomaker it came as :PDL1 . Tsp score 1%,HRD positive . No eveidence for EGFR….
Pathology report found cancer cell in Viseceral pleura
Oncologist suggested with chemotherapy of 4 cycles with Cisplatin and Alimta .

Hi @sharwi85, I'm sorry that you and your husband are dealing with this, but I'm glad that you found Mayo Connect. There are many or us here with lung cancer, living generally good lives. There is hope!
I'm glad that you'll be seeing oncology soon. It's nice to have a plan, and to move forward. 5.3cm is significant. Did your husband have a PET scan? Do you happen to know if his tumor was sent for biomarker testing?, if not you may want to ask the oncologist.

I also had 4 rounds of chemo and 33 radiation treatments after my upper right lobectomy in 2018. I also had brain radiation, but that was after they removed the 3.2cm (about 3/4 of an inch) diameter metastatic cyst from my brain in 2020.

What side effects are you asking about? My doctors have told me that some of the symptoms I've dealt with could have been caused by chest radiation years ago. Chemo can lead to soft tissue hardening that also lasts for years. I'm still doing PT regularly to reduce muscle and fascia stiffness and chronic pain. Manageable pain in my case, but I look forward to eliminating that.

Wow! That was a lot to go through! God Bless You! I think the best and only person that should answer that question is your Oncologist. After going through all of that you should only follow what they say. Don’t want to do the wrong thing and make anything worse. I pray you will feel better soon!🙏
Cindy

i was diagnosed with SCLC 6/21/2022 and completed 4 courses of chemotherapy and 33 radiation treatments plus prophylactic whole brain irradiation x10 and completed treatments 12/2022. When can expect all the side effects of treatment subside or resolve. I feel worse now than before the treatment. What can I do to improve the side effect symptoms?