Living with lung cancer - Introduce yourself & come say hi

@meka good for you! Taking positive steps! you can have someone else make the referral? What about telling your senator this?

Merry, going to my Senator's office today, will sign release, and share story. Yesterday, Oncologist at VA said we could just radiate it. Asked for second opinion outside of our area. Said he can't refer me to Mayo, because they seem to think a second opinion locally, but would see about a referral to Minneapolis VA, which I know is not a cancer treatment VA. Trying not to be crazy, thanks!!!

@carrington- Hopefully they will call soon.

Thank you for the feed back and the link. I am waiting for them to call me for the date of the CT Scan. I am assuming it will probably be after Christmas.

@carrington- Welcome to Mayo Connect. Pulmonary Carcinoid cancer is a different kind of lung cancer and more unusual than carcinomas and multifocal adenos. The levels of markers in your blood that you mention have risen and I am very glad that your have a CT scan rescheduled for an earlier time.
It's very very difficult not to worry when we have an unexpected test result. No one can tell you not to be concerned or worried. But what I see is your doctors responding very timely for you so that they can respond as quickly as needed. when is your new CT scan scheduled for?
https://www.cancer.org/cancer/lung-carcinoid-tumor/about/what-is-lung-carcinoid-tumor.html. They tend to show up in more than one place in your body too.

Rather timid here. First time to post. July 9 I had the lower lobe of my left lung removed due to a pulmonary carcinoid (stage 3) followed in August by removal of lymph nodes. All except the two nodes taken with the first surgery were clear. In September my Chromogranin A, Serum was 929 ng/ml (normal is 93 ng/ml or lower). December's blood test indicated that it had risen to 1614 ng/ml. A new CT Scan is to be done sooner than the one originally planned. I am trying not to be concerned. Any advice or comments?

oops posted in wrong place

@meka- How did you make out?

Not sure what is going to happen today. I'm going to ask if I could record whatever it is. You may, are there any VA medical centers that are cancer centers, or affiliated?
I do have a friend that goes with me, so some support. Will head straight to Senators office today, if I need too.
Good note, we are having one of those mid December warm-ups and have spent much time out with my dog, Summitt and to the dog park yesterday. He always makes me laugh 😂!!!
No I am very asymptomatic, yes I didsmoke and have mild COPD.
Always been active physically, it's served as an outlet all my life!
Again, thanks for you all being so willing to support and listen. Looked for a group locally, not. Anyway out to get my vitamin d before I go. !!

@meka- I am so sorry that you have to go through all of this just to get a diagnosis and treatment. I'm literally at lost for words. First of all there are no "best kinds of cancer" and secondly there really aren't any cures, there are treatments. There are cancers that are virulent, aggressive cancers and very indolent ones-slow moving or not changed. And there is hope- we are all here as survivors! as I have said I am a 21 year survivor of lung cancer!
Here's my advice: Go to your politician and don't leave until you get some positive results toward better health care. Secondly, not all lung cancers that have more than one lesion are metastases. Three of us on this site have what is called Multifocal Adenocarcinoma of the lung, which mean that there are more than one lesion at a time. Please don't try and read your tests. Unless your results have been confirmed by a radiologist I don't think that it's a wise idea unless you have been trained to do that. Otherwise you will be driven crazy.
I was a bit confused about where this all leaves you. Tomorrow is Monday and you need to think about one goal at a time as @sakota suggested. What will yours be? What symptoms do you have? Are you breathing ok? Are you in pain?