Living with lung cancer - Introduce yourself & come say hi

Mayo Clinic AZ is amazing with doctors who are very well connected to Rochester MN Mayo Clinic. Have you researched your specific health concern along with the research center you would prefer to be at? I hope you feel better,

Because the CT showed a nodule into the lung and 3 spots on my liver. Add the doctor saying it is most limely aggressive.

Margot I think you will have to wait for results. Then we'll know more about the next step. Most likely you'll have a biopsy, to confirm what kind of cancer and stage. Why did you mention stage 3 or 4?

I wish I knew what info I need. Without having test results, just not sure but the compassionate Pulmonologist inferred it is cancer and aggressive, gave me two pamphlets to read, ordered the tests and that was about it. All I heard was Cancer and aggressive and gave me the impression I would not be around long. I just want to have some ducks in a row and have some info. Since I am in the Central Valley, Ca, I am particularly interested in knowing if anyone has gone to Stanford or UCSF. UC Davis is about the same distance but I have never really heard of anyone being treated there aside from a friend who had her Stanfird treatment plan transferred there as it was closer tomHome. She had lung cancer and passed 8 months later. I think she did Chemo and got into a trial. I woukd like to know if anyone is a survivor of Stage III or IV and what treatment they received. Seems like most posts are from people back East. Know if any groups in n the West Coast? Admittedly, it is Christmas so I will have to find the time later to try and sort this all out. Thanks

Margot- This is a great place to come to connect with people and get the information that you want/need. What information are you looking for?

We had a pretty good doctor, now retired. I did not care for the other doctors in that group. Went to see a Specialist at Sutter Gould and kind of gravitated over there. I have other health issues they can't figure out, GI, mouth and throat, Osteo, neuropathy, MGUS,. I also have had to go to Stanford who hasn't been much help. We have few good doctors here and, the ones people seem to like, are not taking new patients. I am so tired of doctors and don't know what to do. I guess I have to wait for these test results. That is why I came here as I don't have much information.

@margot69-I know how you feel about wanting to wait until after Christmas for tests results. I'm just the opposite- I want to know the results even before the test is done, lol. But I get you. I'm glad that you have one doctor that you feel that you can trust. May I ask, why are you staying with your present doctors if you don't trust them or like them?

I had blood work done this morning. The test results in all look ok. Actually, I am sitting here now killing time waiting tondo the PET scan as they just injected me. Truthfully, I don't want any results until after Christmas. I really do not want to have to travel. I feel more comfortable in my own home. That is why I asked if anyone has gone to Stanford or UCSF. I have not been on here that long but most seem to be on the East coast. Actually, my GI Doctor called me at home because I let him know what was going on, He called as site messages can be seen by others. He is more supportive then my own damn doctors. He will keep,an eye on things, esp my liver.

Bravo!!! I was 58 when I was diagnosed, too! It’s been 12 years! Love to stay Connected!

@meka- Any more news?