Living with lung cancer - Introduce yourself & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Mar 2, 2017

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

pb50 | @pb50 | Jan 8, 2024

mikee2all | @mikee2all | Jan 8, 2024

In reply to @pb50 "Are you getting your diagnostics and treatment now on Costa Rica? I understand there is quite..." + (show)

Yes, I am in the "CAJA", their medical system and have an appointment to see their oncologist the 23rd of January. I also have a private lung cancer specialist. She is the one that put me on Tagrisso, even though I paid for it. I will find out on the 23rd is the system will continue my Tagrisso.

pb50 | @pb50 | Jan 8, 2024

In reply to @mikee2all "I have an appointment for 1st of February. Living in Costa Rica, I'll fly out a..." + (show)

Are you getting your diagnostics and treatment now on Costa Rica? I understand there is quite the ex-pat community there.

mikee2all | @mikee2all | Jan 8, 2024

In reply to @pb50 "Stay in touch. I have no idea how it works these days but I have vet..." + (show)

I have an appointment for 1st of February. Living in Costa Rica, I'll fly out a day before. I'll let you know....

pb50 | @pb50 | Jan 8, 2024

In reply to @mikee2all "Yes, I am in their system and am talking to them now about an appointment. I..." + (show)

Stay in touch. I have no idea how it works these days but I have vet buddies who live more than x
miles from a vet facility and they can pretty much use whoever they want for their care.

mikee2all | @mikee2all | Jan 8, 2024

In reply to @lls8000 "Hi @mikee2all, Please follow up with your oncology department and/or AstraZenica. These drugs are so expensive,..." + (show)

Thank you for your message and I will follow up and keep in touch.

mikee2all | @mikee2all | Jan 8, 2024

In reply to @pb50 "Mikee are you in the VA Health system? I am not - waited too long to..." + (show)

Yes, I am in their system and am talking to them now about an appointment.

I want to stay on Tagrisso and not sure they will continue it.

pb50 | @pb50 | Jan 8, 2024

In reply to @mikee2all "Thanks so much for the info. Very helpful. I have only been on Tagrisso for 35..." + (show)

Mikee are you in the VA Health system? I am not - waited too long to get coverage after discharge from the Marines, and now I don’t qualify. So I couldn’t be much help in terms of process but I know there are people who can if you need that.

Lisa, Volunteer Mentor | @lls8000 | Jan 8, 2024

In reply to @mikee2all "Thanks again for your info. I will follow what you say and let you know. AstraZenica..." + (show)

Hi @mikee2all, Please follow up with your oncology department and/or AstraZenica. These drugs are so expensive, nearly all of us couldn't pay the out of pocket costs. I'm on a different targeted therapy, for a different mutation (ALK), and I know the manufacturer of that med has a few different assistance programs. Welcome, and let us know what you find out.

mikee2all | @mikee2all | Jan 8, 2024

Thanks again for your info. I will follow what you say and let you know. AstraZenica is located very close to me. I am working with them but they have not mentioned any type of help.
I'll let you know..