Living with lung cancer - Introduce yourself & come say hi

I found multiple published articles by NIH and the American Cancer Society. The most recent NIH article was published in 2017 and is the most promising, stating that "Pulmonary carcinoid tumorlets are rare, benign lesions". In the papers spanning the previous 10 years, there is more uncertainty, generally concluding sometimes they develop into tumors but most times they remain small. By definition, a tumorlet is defined by size - less than 0.5 cm or 5 mm in diameter. Overall, nothing to worry about and you should focus on being happy the tumor is gone!

I was pretty open about my cancer, so when I sent to my 40th high school reunion last year, most of the guys already knew. (I attended an all male, Jesuit high school.) I heard a lot of stories about guys that had gone through pancreatic cancer. But most relevant to this thread is the one friend who pulled me aside and confided that he has survived 3 types of cancer and currently has one that will eventually kill him. By profession, he is a Psychiatrist who has worked with numerous cancer patients prior to and during his own experiences. He kept in touch after the reunion and helped me as I was going through chemo and radiation. The most important lesson he shared with me was "You have to give yourself permission to rest." I've found this to be good advice.

Keeping you in my prayers.

@alamogal635 - check out this magazine There's a wonderful magazine called CURE magazine. https://www.curetoday.com/ It is absolutely the best in up to date news, research and spend a lot of time with each different cancer. And a lot of time with lung cancer stories. I believe that it's free.

@alamogal635- I am so glad that you are taking care of your self! This is a big deal because too many people push too hard or they don't take care at all. I know the fear that you are feeling. As you get more active you will spend less time being afraid, but I think that you said that it's there, always lurking. And it will, always be there lurking. But as all things, you get use to it. But you are still very new to this threat so try and roll with it. I urge you to write your journey down. Later you will be amazed at how you truly feel. You don't have to share it like I chose to do. Can you take something to make yourself more comfortable at night? A good night's sleep is very important.

@merpreb what a fast response! I am sorry that anyone has to go through any kind of cancer, or similar disease. I will keep you posted. Also will see a pulmonologist. Anyway, the waiting is tough and underneath Ivam frightened of the possible unknowns, but such is life. Couldn’t get comfortable last night mentally, or physically. Going to lue here on my favorite couch acdoze/sleep some. Taking today off😀

@alamogal635- I know that it's all new to you. I'm sorry that you have to learn about this at all. Your lesions are small so you might not need any treatments. Fingers crossed! I'll look forward to hearing what he has to say! This site is terrific!

@merpreb It is all new to me. Don't see my Onco until the following week. See the surgeon next week and will bing it up with him. At least the carcinoid was removed along with the Adeno. No further treatment was suggested since my team was only aware of the Adeno. No, this carcinoid appeared in the path report as an additional finding when testing the lymph nodes and surrounding tissues for spread fo the Adenocarcinoma--there was none and the carcinoid celet showed no spread either. I thank you for your referral to other sites here and will read and learn as much as I can.I look forward to hearing what my Onco has to say and what measures he will take to follow and/or treat possible recurrences of either and any of such cancers. It is so wonderful to have access to this site.

@alamogal635- Morning- Boy you never know what is going to show with scans! My next door neighbor had two carcinoid tumors removed several months ago. She has recovered very nicely although she is still tired. Personally I have never heard of it together with adenocarcinoma.
Here are a couple of sites that you can check out.
https://www.mayoclinic.org/diseases-conditions/carcinoid-tumors/diagnosis-treatment/drc-20351044
https://www.mayoclinic.org/diseases-conditions/carcinoid-tumors/symptoms-causes/syc-20351039
Did your Onco discuss any further treatments? Has he explained any of this to you?

Glad for this group. Saw my PCP today post surgery--adenocarcinoma in right lower lung. Physical healing is coming along well according to her and according to how I"m feeling more the 50% of the time. Anyway, I have a copy of the path report from the surgery-the cancer is gone. However, path report shows the surgeon also found and removed a 3mm cancinoid turmorlet. Both lesions did not include other tissue, or lymph nodes. According to my doctor, these turmorlietbs can either occurring the lung itself, or originate in the intestinal area. Anyway, I will be under the observation and working my my oncologist. Has anyone else had one fo these tumorlets? Does anyone know more about them? There seems general, but not specific information about such things. At least the thing is also out of my lung. Thank you anyone for information about this finding.

@imkate- I can imagine that it's pretty frustrating not knowing what you "have". This is one of the things I don't understand is when doctors who don't make sure that you're familiar with what is going on. Have you asked your Oncologist to identify your cancer? When you go to the doctors it's very important to have list of questions with you and to have someone with you. You might not know what some of the questions to ask but you certainly have some, and the doctor needs to answer everyone of them.
Here is a guide to work your way round Connect. https://connect.mayoclinic.org/get-started-on-connect/

Here is my blog. It highlights my journey. https://my20yearscancer.com/
When is your next appointment with your oncologist? How is your breathing? I wish that I could reassure you that this cancer isn't as "bad" as other cancers. all cancers are bad. However if you do have multifocal adeno. it is very slow growing cancer.
Please feel free to ask me any questions or any of the other people that I have mentioned. I hope that you get back to me.
https://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041

@merpreb Thank you for the reply. How can I learn about this when oncologist has never given it a name or prognosis or tx plan? Where can I find your bio, having difficulty navigating the site. 🔩