Living with lung cancer - Introduce yourself & come say hi

I had chemo after my first lobectomy. I do try and keep my head up. I try and play pickleball, and I can go three-to-four games and then I'm done.

That’s my biggest fear is recurring nodules.. . Did have any chemotherapy?? You definitely have had lots of surgeries.. Sounds like you have not let it get you down, I’m sure you have your moments.. As you said we are very lucky, 30 yr ago would have been a different story ..

I have had a double lobectomy. Two-thirds of my right lobe removed in 2014. Four years later it arrived into my left lung. Eighty-to Ninety percent of my left lung removed. They did not get a clear margin. 2020, spots on left lung and remaining right lung. I went for analysis at Mayo, after all the testing and radiation on my left lung. I now have scans every six months as spots continue to grow very minimal. I feel pretty fortunate to be walking around today and even play pickleball--should say go onto the court--my breathing is an issue as I don't have the capacity I used to have. I'm constantly out of breath, but again I feel pretty lucky.

I am recovering from lobectomy upper right lobe. 6 weeks today. Mucinous Adenocarcinoma.. Robotic surgery, so far my recovery sounds similar to yours.. lots of numbness and nerve pain.
Definitely still feels like a tight bandage rapping around my mid-section. They said all lymph nodes were cancer free and removing the lobe got rid of the cancer. I have to have a cat scan in 4-6 months then to a pulmonologist to monitor me .. I feel very fortunate but still worried for future scan results.. you said your 7 months .. How are you feeling now .. have you had any therapy??

Hello mikee2all,
Astra-Zeneca does have a Tagrisso drug reimbursement plan called AZ&Me Prescription Savings Plan and you can find information and application information on their website or by searching on AZ&Me. Note however that at least for US patients that they have raised their income thresholds in 2024 for who they will provide free Tagrisso. The income requirements and other stipulations should be stated on the website. It is probably a bit of work to manage the paperwork required but the benefits of continuing to be on Tagrisso will be well worth the effort!
Good luck with the reimbursement efforts and in managing the Tagrisso side effects!

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Yes, I am in the "CAJA", their medical system and have an appointment to see their oncologist the 23rd of January. I also have a private lung cancer specialist. She is the one that put me on Tagrisso, even though I paid for it. I will find out on the 23rd is the system will continue my Tagrisso.

Are you getting your diagnostics and treatment now on Costa Rica? I understand there is quite the ex-pat community there.

I have an appointment for 1st of February. Living in Costa Rica, I'll fly out a day before. I'll let you know....

Stay in touch. I have no idea how it works these days but I have vet buddies who live more than x
miles from a vet facility and they can pretty much use whoever they want for their care.