Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

@armycolonel

Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

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That is great to hear, I am so glad to hear that can actually happen... I am new to this group and also brand new to adenocarcinoma lung cancer. I am exploring options at this point, although current advice is to wait 5 months until next CT scan to see if there has been growth....I have requested targeted radiation but met with hesitation as the word was that side effects from the radiation not currently worth the risk..i would appreciate how the shrinkage occurred - radiation?
suraleah

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My husband has been diagnosed with stage 2b lung cancer, 2 weeks back had lobectomy(left low lobe), now referred to medical oncologist, he is pDL1 positive and HRD positive.

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@armycolonel

Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

Jump to this post

So glad for you. I wish for the same.

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@pb50

Yea!!! Merry Christmas!

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Thank You!
Merry Christmas and Happy Year!
Prayers for everyone!

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@armycolonel

Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

Jump to this post

Yea!!! Merry Christmas!

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@sura

Oh I have been imagining all this, as the time is closer to each CT scan the anxiety increases. What treatment have you had? When my nodules grow or become otherwise worrisome I am playing to make a trip to Mayo for their opinion and maybe for their treatment as well. They are no longer doing out-of-state consultations, I am in Chicago so it's a 5-6 hour drive to Minnesota Mayo. I have been going alone to my appointments - went to all hospital visits with my husband for 4-l/2 years for his prostate cancer treatments, in clinical trials. He died 3 years ago and I still acutely remember the hospital visits & anxiety....yikes, sometimes life asks so much.

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@sura- Life sure does tax us at times! I am very sorry for your husband's passing.

I wish you the best with Mayo Clinic. I use another hospital because I live in New England, and we have Mass General! I was even there once when Teddy Kennedy was hospitalized.

Take care of yourself this holiday.

Merry

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Good Morning,

Great News!
Adeno lung tumor shrunk. So, Thankful
CT in 4 months

REPLY

Oh I have been imagining all this, as the time is closer to each CT scan the anxiety increases. What treatment have you had? When my nodules grow or become otherwise worrisome I am playing to make a trip to Mayo for their opinion and maybe for their treatment as well. They are no longer doing out-of-state consultations, I am in Chicago so it's a 5-6 hour drive to Minnesota Mayo. I have been going alone to my appointments - went to all hospital visits with my husband for 4-l/2 years for his prostate cancer treatments, in clinical trials. He died 3 years ago and I still acutely remember the hospital visits & anxiety....yikes, sometimes life asks so much.

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@sura

good to know others are out there! every little twitch now worries me, it is ridiculous... I am trying to master this, there will be lots of time to worry. Thoracic clinic is confident we do nothing right now, quality of life is fine. Removing the 3 large nodules would not significantly alter breathing and docs believe I would do well with the surgery. But they do not want to do it now, adenocarcinomas are too small, doubled in size over 7 years. They will refer me to a radiation oncologist if I wish, but believe they would advise to do nothing at this point. and a PET scan would not pick up something this small. I believe we will know more with the next CT scan in May - has the tissue changed? Have they grown? So until then I am trying to master being calm, not yet successful. I am sure I should be appreciative we caught this so early and somewhere in there I am, but still worried for the long-haul future, What is your situation?
helpful.

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@sura- You certainly have been busy! I've had lesions that have been too small that a PET won't pick them up either. Right now, I'm waiting for a CT on January 19th. I am not looking forward to this at all. I might ask my sister to come with me. I travel out of town for Cancer treatments. It takes a little over an hour and then I have to take a taxi through Boston traffic. As is I won't have enough anxiety!

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@merpreb

Hello, @sura- How are you this morning? I wanted to check in to see how you are handling this. I am also 77, just! lol. I agree that science has come a long way in the treatment of multifocal adenocarcinoma!

Merry

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good to know others are out there! every little twitch now worries me, it is ridiculous... I am trying to master this, there will be lots of time to worry. Thoracic clinic is confident we do nothing right now, quality of life is fine. Removing the 3 large nodules would not significantly alter breathing and docs believe I would do well with the surgery. But they do not want to do it now, adenocarcinomas are too small, doubled in size over 7 years. They will refer me to a radiation oncologist if I wish, but believe they would advise to do nothing at this point. and a PET scan would not pick up something this small. I believe we will know more with the next CT scan in May - has the tissue changed? Have they grown? So until then I am trying to master being calm, not yet successful. I am sure I should be appreciative we caught this so early and somewhere in there I am, but still worried for the long-haul future, What is your situation?
helpful.

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