Living with lung cancer - Introduce yourself & come say hi

Last day of radiation - have been home between 3-5 each day of the 10 days - gave 4 hours travelling time with the construction work along the way there was a couple days they moved appointment up from 2 - to 1 & 1:40 of course we made time and arrived early think there was only one time had to wait very long most generally we were in and out before the scheduled time they are the greatest. done it for gas/snacks and a meal only 3 days did not stop for sandwich/meal the one day before i splurged stopped for Kentucky Fried Chicken family meal so there was plenty of leftovers for the next day - other 2 days said he did not want to stop done it for $495.18 - just the room board for the dog & cat and motel room for us these day days would of been $1933.10 not sure if we would of have to pay for transit while there or not; the valet parking was validated for all visits including initial dr visit too. Not sure if have helped still visibly swollen go back to radiologist on the 17th - his reg dr/labs/immunology next Friday still awaiting the Genomic reports... Amazingly it went very well except for a close encounter with a deer last week and this week... of course the Indy traffic but that's becoming old hat now.. started this journey in Oct 2017 (started with only an initial chest x-ray to see why was coughing so much then they ordered a ct which had to wait a week plus for results at local hospital in Sept - when family dr. only comment result was Thoracic surgeon & biopsy I said IU Medical center tried to get us to go locally but stuck to my guns not been sorry its been well worth all the travel time) God will only how much longer

Thanks for the info. Its not really been as bad as I thought it would be... Someone worse off than us needs the help as long as I can do it... there may come the day or time I can not but will cross that bridge when it comes. I bought a fabric/mesh/wire play pen for the cat as she likes at times to bounce off the walls... Its worked out better than I thought I did into even sleep in past 9:30 today...

I done it 1000 miles under my A$$ this week for 252.14 for gas/snack and one meal per day did without the meal today; and saved 714.14 if had gotten a motel & boarded Aries (the dog) & Lucy Lou (the cat) and t did not figure in the meals for the week. Reprieve for 2 days and start over....

So far so good really not tired... even been up each day before the alarm went off...

He seen dr. (radiologist) wed after treatment said some noticeable change... not really sure I do notice he holds that arm differently than the other ; sees dr. (radiologist) on wed not sure if again but scheduled for regular oncologist/lads/infusion no schedule for June as yet -

Not got anything done here at home but will try to without over doing....

Still ceases to amaze me somewhat the sister and brother-in-law has never bothered to calling once this week to see how things are going if car is holding up, if anything is needed - oh i know the both work but....

Update - Biospy -& that it was consistent with his lung primary sent to Nantomics which was the goal of Precision Genomics 5-6 weeks for results; they said the LT Axilla Lymph node was okay to do even tho it is RT supraclavicular neck lymph node that is the problem this still mystifies me since its not the one responding to the treatments had so far and the LT Axilla Lymph node has responded and remained stable and not started to re-grow like the RT supraclavicular neck lymph node

the radiation making mask/simulation was yesterday back on May 1 for whatever and then treatments begin for 10 days on May 5-10; 13-17. Drs appointment/infusion canceld for 29th because of radiation and re-scheduled for May 24th Dr. / Infusion of Prembro / KEYTRUDA® (pembrolizumab) There will be an appointment somethine in June for the Genomics.

Going to try to do a daily trip as motel room & boarding the dog & cat will be 967 not counting a meal a day - for a week - can do a daily trip gas/meal/valet parking for 453 and if works out like yesterday the valet parking is "validated" so give $50 to play on SO far no help on expenses has been offered there was offer for finding motel room but the options they had could not bring the dog (dachshund) and cat (siamese) with us.... So $ wise its cheaper to make daily trips....

Only concern is the car but it goes to pot in hand basket no loss for what paid for and whats wrong with and friends father being lied to about the condition we more than got our use out & what we paid for it
besides having to withing first week of have to buy a battery & alternator & then the brakes & left rotor & drum and
Medically its made
41 trips to Plymouth (53 miles round trip)
12 trips to Culver (20 miles round trip)
1 tp South Bend/Mishakawa (100 miles round trip)
55 to Indianapolis (200 miles round trip)
besides all the local trips for Grocery and shopping.

Just praying that the car and me can out last the month of May and really the car has to hold on till after October...

@wally1940 - I should have included this link in my earlier post...a great web site to try to get answers!
https://www.cancer.org/cancer/lung-cancer.html

@wally1940 - Wow...So sorry for your diagnosis!
I am not a doctor and not a cancer patient...but I have been a caregiver for my wife who had two adenocarcinomas removed surgially in 2015 (two lobes)...Non Small Cell Lung Cancer.
She is doing very well today, but not until going through some unusual circumstances.
Some of the key things I think are important to unerstand:
1) Is this Non Small Cell Lung Caner or Small Cell?
2) What are the size of the tumors
3) Are you a candidate for surgery?
4) If so, is a VATS procedure possible? Much quicker recovery than open chest...
If not, what type of treatment is available...radiation, chemo, etc?
5) Have you had Biopsies? If so, what type of mutation is it?
6) Is a Molecular study in order to identify exactly what mutation it is?
In my wife's case, they did not do this until after she did not respond to the typical NSCLC immunotherapy (Opdivo) and her cancer advanced from stage IIIa to stage IV. They then did the Molecular study and determined her's in a Erbb2 mutation.
7) Where is the best Cancer Center? Not necessarily the nearest, but the best!
Best of luck! Keep asking questions!!!

Tereasa/ (Nancy-shortshot) Good Morning all, CT results tomorrow and I will let you know. My book is in the last stages before printing. I just have to get it in "the right time line" When I was talking and my friend typed, I did not think of the year and I just put things in the right order. So am working on that now. Memories are at times all mixed up. Anyway it's a start. I want to get this done. It is a beautiful day today and my youngest son is out in the ocean fishing. He fished yesterday also and we had fresh cod for dinner last night. He also put crab pots out yesterday so hopefully we will have a crab salad tonight too. Also with fresh strawberries and sliced tomato will make a great dinner. Don't know if you remember me talking of my granddaughter's husband with the horrible rare cancer he had in his sinus' cavity, anyway he had gone through a rough series of chemo and everything, anyway he is cured and doing well. They are trying to have a baby. They may have to use the frozen sperm. Not sure yet. Also the cancer was behind his left eye and now his vision is coming back, praise God on that and being cured of the cancer. More later..... Nancy