Living with lung cancer - Introduce yourself & come say hi

I have been watching since the radiologist visit... Its just one lymph node at the shoulder/neck supraclavical the term used in the ct scan reports.. we shall see what the regular oncologist has to say the radiologist has not been as informative as regular dr. but he & colleagues did notice the weakness in that arm Know it has been painful to him since January but he is not a complainer so i have been trying to take notice more of how he holds it etc. maybe I am overreacting

No options for other treatments as of now - the genomic testing favorable with the Prembo KEYTRUDA® (pembrolizumab) so will continue on it till it no longer works - scans after 1 or 2 more infusions to see where stand and see if lymph node goes down any ; the neck lymph node still very noticeably swollen - arm bothering me - offer of pain med - but he has opted not to take for now - yesterday was a test of patience - everything was running 1 hour + behind - was there on time for the labs at 12:15 - dr. was to be at 12:45 did not get into to dr. till 1:30 and sat there till after 2 p.m before seen and a resident/intern 1st then reg. dr. checked out at 14:51 by summary sheet (2:51) was scheduled to be infusion at 1:45 p.m. so did not get out of there till 5 came straight home he did n ot want to stop get something to eat so rolled in about 7:30 did stop finally to get something cold to drink within 50 miles of home besides our lukewarm coffee... the wind was up so driving was a strain along with a vibration in the steering wheel means a call to the brother-in-law - labs/dr/infusion on 14th and radiologist on the 17th. Has put him on the list for any studies he might fit into - There is one other drug but he says more wicked side effects and as long as the prembo is working and he has had no side effects to speak of and this one
requires 2 treatments in the 3 week period

I have been watching since the radiologist visit... Its just one lymph node at the shoulder/neck supraclavical the term used in the ct scan reports.. we shall see what the regular oncologist has to say the radiologist has not been as informative as regular dr. but he & colleagues did notice the weakness in that arm Know it has been painful to him since January but he is not a complainer so i have been trying to take notice more of how he holds it etc. maybe I am overreacting

@shortshot80 Hi Nancy

I'm so glad that you are back with us on Connect! The results of your last scan sound great. I'm excited to learn that you are still working on your book. I hope you begin to get back your energy. You've been through a lot with your broken hip and it does take a while to bounce back.
Wishing you well. Hope to hear from you again soon!

(shortshot Nancy) Hi Colleen, I have been not feeling so sharp for the last couple weeks, nothing with the lung cancer, just don't know what, but am getting somewhat better. I tried to log in and they don't know my email address again. I must have upset the "emil god" any
way here I am. I had a cat scan and saw my doc's and I have to go back in three weeks for another blood test, then wait for six weeks for another cat scan. The last scan showed that my lung cancer had shrunk some and a couple of nodules had disappeared. So that's a good thing. So I have been working some on my book. Hopefully I will get it finished soon. Thanks Colleen for all your help. Nancy Bush
This also to Teresa (hopeful) Nancy

Thanks for the additional information @burrkay. So grateful your oncologist persisted and found the molecular root cause. I'll be thinking about you and your wife on Monday. Please update us when you can.

I will at least will be able to have immunology been well over a month since the last infusion - but for some reason said no to it while having the radiation - that lad/dr/infusion was to be 29th of Apr. - radiologist not till 17th I know he had been holding/carrying his right arm differently for well over a month now - so the swollen neck lymph node is affecting the main nerve in the arm...

Genomic testing in this was the message "All results from genomic testing were reviewed at the tumor board and unfortunately there were no recommendations that could be given based on those results. Also, no germline or hereditary link was found." Have been sent to his regular doctor so will see Friday what he says at this point not sure what to make of it - and what questions there is to ask if any - Maybe I am wrong but I still think it should of been the neck lymph node tested and not the axillary which has responded to treatment and stayed stable thus far.