1. < Lung Cancer
Moderator

Living with lung cancer - Introduce yourself & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Mar 2, 2017

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 29, 2024
In reply to @catsandra "Hi I’m 76 and on day 2 of radiation. I have one tumor inside lung and..." + (show)
@catsandra

Hi I’m 76 and on day 2 of radiation. I have one tumor inside lung and 2 cancerous nodules outside. Was told nodules could migrate and could travel other places ( not in other parts thank goodness) had 2nd pet scan after nodules found. I’m told possibly radiation could affect esophagus. As anyone experienced what would be my symptoms if it does. I’m alittle worried. With age I’m not taking chemotherapy just radiation. Will this kill cancer in nodules? Or is this hopeless? Glad I found your blog

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@catsandra, I can imagine you're concerned about the potential damage that radiation can do. The radiation specialists will deliver the treatment to have the maximum effect while trying to minimize negative impacts. They will monitor you closely.

The radiation can kill cancerous cells, reduce the size of the nodules and/or eliminate them, slowing the progression.

Are you getting radiation every day? How is it going?

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1 reply
catsandra | @catsandra | Jul 21, 2024

Hi I’m 76 and on day 2 of radiation. I have one tumor inside lung and 2 cancerous nodules outside. Was told nodules could migrate and could travel other places ( not in other parts thank goodness) had 2nd pet scan after nodules found. I’m told possibly radiation could affect esophagus. As anyone experienced what would be my symptoms if it does. I’m alittle worried. With age I’m not taking chemotherapy just radiation. Will this kill cancer in nodules? Or is this hopeless? Glad I found your blog

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1 reply
joycegray1940 | @joycegray1940 | Jul 16, 2024

Has anyone ever heard of the cancer medication Tabrecta used for lung cancer?

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1 reply
Merry, Alumni Mentor | @merpreb | Jan 22, 2024
In reply to @colleenyoung "Hi Joan, is this the same Joan as @sakota? So good to hear from you. I..." + (show)
@colleenyoung

Hi Joan, is this the same Joan as @sakota? So good to hear from you. I bet @merpreb will want to also say hi.

I'll PM you about merging your 2 accounts together.
Welcome back. I think you're kicking darn high. Thank you for your message of gratitude and hope.

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Joan!! Hello. Boy, it's great to hear from you. It sounds as if you've been having a rough time of it.

You say that when you get ill it's your meds that you forget about. Does this mean that your forget your meds and that makes you ill?

Merry

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 21, 2024
In reply to @jp78 "Hi I'm back and still kicking but just not as high!!! Its been awhile since I..." + (show)
@jp78

Hi I'm back and still kicking but just not as high!!! Its been awhile since I was in here but I am dealing with the adenocarcinoma, copd, diabetics, congestive heart failure........and the list goes on. As of now I am in assisted living, have had some flare ups of the copd, still have the cancer in my lungs which they keep watching. I go back in a couple of months for another scan. Right now I take 17 different medications , first it was low. like my magnesium, iron, potassium, then had a uti, 7 infusions for that . But on the whole I can still take care of myself, just more slow, I do get all my meds delivered to me because when I get sick, meds are what I forget about. So people...... I know days can get rough, but please count your blessings, thank the Good Lord for watching over you and giving you another day..... so enjoy it the best you can.......... Joan (sakota)

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Hi Joan, is this the same Joan as @sakota? So good to hear from you. I bet @merpreb will want to also say hi.

I'll PM you about merging your 2 accounts together.
Welcome back. I think you're kicking darn high. Thank you for your message of gratitude and hope.

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1 reply
jp78 | @jp78 | Jan 17, 2024

Hi I'm back and still kicking but just not as high!!! Its been awhile since I was in here but I am dealing with the adenocarcinoma, copd, diabetics, congestive heart failure........and the list goes on. As of now I am in assisted living, have had some flare ups of the copd, still have the cancer in my lungs which they keep watching. I go back in a couple of months for another scan. Right now I take 17 different medications , first it was low. like my magnesium, iron, potassium, then had a uti, 7 infusions for that . But on the whole I can still take care of myself, just more slow, I do get all my meds delivered to me because when I get sick, meds are what I forget about. So people...... I know days can get rough, but please count your blessings, thank the Good Lord for watching over you and giving you another day..... so enjoy it the best you can.......... Joan (sakota)

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1 reply
thieschafer | @thieschafer | Jan 15, 2024
In reply to @sglaza "Hello thieshafer, You really need to check with your oncologist before you think about taking some..." + (show)
@sglaza

Hello thieshafer,
You really need to check with your oncologist before you think about taking some THC to help with your nausea and eating. THC is contraindicated with some cancer chemotherapy drugs rendering them to be ineffective per scientific reports that have been posted on this blog.

Good luck.

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That's what I was afraid of. So I will only take what they give me:) Thanks for the warning. I apreciate it.

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chris0126 | @chris0126 | Jan 14, 2024

I have my days. But most times I do pretty good. I just wish the radiation was done to give my throat a chance to heal.

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chris0126 | @chris0126 | Jan 14, 2024
In reply to @lls8000 "Hi Chris (@chris0126), welcome to Mayo Connect. I'm glad that you found us. We have other..." + (show)
@lls8000

Hi Chris (@chris0126), welcome to Mayo Connect. I'm glad that you found us. We have other lung cancer patients here with Squamous Cell Carcinoma like @snoekie and @coryw . You've been though the ringer, but it sounds like you are in the home stretch of this set of treatments! That has to feel good. You have positives to focus on, even with the size of the largest tumor it sounds like the cancer hadn't spread beyond the lungs, and the chemo should take care of any cells that may have slipped by. Based on your profile photo you have family support which is so important too. Enjoy each day!
Have you been told how long they'll wait before doing the next set of scans?

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4-6 weeks is what I was told. Waiting to see now.

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chris0126 | @chris0126 | Jan 14, 2024
In reply to @colleenyoung "Hi Chris, I removed the image that you included with your post because it included your..." + (show)
@colleenyoung

Hi Chris,
I removed the image that you included with your post because it included your medical record number. Feel free to post it again without the MRN.

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Not sure how to remove it. Feel free if you know how and put it back up. No worries here. Thanks!!

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