1. < Lung Cancer
Moderator

Living with lung cancer - Introduce yourself & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Mar 2, 2017

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

dedehans | @dedehans | Jul 15, 2022
In reply to @merpreb "Hello- Was there a mention of what the spots might be on your thyroid or adrenal..." + (show)
@merpreb

Hello- Was there a mention of what the spots might be on your thyroid or adrenal glands? I am so glad that you have come back to the group.

I have my CT scan tomorrow to see if my 7th lesion is my 6th cancer! It changed 6 months ago. grr. It's been 5 years since my last.

xxoo

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Merry...praying your scan is "unremarkable" ..... lesion not changed..please let us all know. xoxo
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digibson | @digibson | Jul 14, 2022
In reply to @merpreb "Hello- Was there a mention of what the spots might be on your thyroid or adrenal..." + (show)
@merpreb

Hello- Was there a mention of what the spots might be on your thyroid or adrenal glands? I am so glad that you have come back to the group.

I have my CT scan tomorrow to see if my 7th lesion is my 6th cancer! It changed 6 months ago. grr. It's been 5 years since my last.

xxoo

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Merry, Prayers for you for you ct scan. Please keep us posted.

I had a ct yesterday and whatever tumors there are on my liver are either dead or dying with the y90 treatments. No new tumors thank God.

Diane

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1 reply
meka | @meka | Jul 13, 2022

Wow, wish you only good things on the scan!!! They checked one nodule on thyroid and consider them stable. Adrenal is new to me, it just said probably benign. Sending energy!!!

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Merry, Alumni Mentor | @merpreb | Jul 13, 2022
In reply to @meka "Still here and on a three month check schedule. All a bit crazy. In the last..." + (show)
@meka

Still here and on a three month check schedule. All a bit crazy. In the last year or so, new growth, left lung, currently stable, RT, now watching 2 new spots. Also thyroid/adrenal spots. In the meantime, gardening, hiking, biking, kayaking and thankful for all of it.
Seriously, thinking of moving to Minnesota, can't downsize where I am and 9 hr drive each way every 3 months is getting old. Next trip is the end of September. Glad to see some people here, and hi to anyone new!!

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Hello- Was there a mention of what the spots might be on your thyroid or adrenal glands? I am so glad that you have come back to the group.

I have my CT scan tomorrow to see if my 7th lesion is my 6th cancer! It changed 6 months ago. grr. It's been 5 years since my last.

xxoo

REPLY
3 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 8, 2022
In reply to @ranc "Forth stage lung cancer,took kimo,lost 40 pounds and 2 blood transfusions,no more for 7 months now..." + (show)
@ranc

Forth stage lung cancer,took kimo,lost 40 pounds and 2 blood transfusions,no more for 7 months now having hard time breathing,can’t eat or drink or walk and headaches ,chest pain for 4days feel like Im dieing, do have oxygen on.Dr. Won’t see me told me to go to hospital ,now on my 6 year.

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Hi @ranc, I'm sorry to hear that you are doing so poorly and with little support from your doctor. Might you have access to hospice or palliative care? Do you live alone?

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meka | @meka | Jul 7, 2022
In reply to @merpreb "Meka-Not at all! And we have expanded! How are you? I've missed you! https://connect.mayoclinic.org/discussion/multiple-lung-nodules/ https://connect.mayoclinic.org/discussion/multifocal-adenocarcinoma-of-the-lung-continual-recurrences/ https://connect.mayoclinic.org/discussion/multiple-lung-nodules/..." + (show)

Still here and on a three month check schedule. All a bit crazy. In the last year or so, new growth, left lung, currently stable, RT, now watching 2 new spots. Also thyroid/adrenal spots. In the meantime, gardening, hiking, biking, kayaking and thankful for all of it.
Seriously, thinking of moving to Minnesota, can't downsize where I am and 9 hr drive each way every 3 months is getting old. Next trip is the end of September. Glad to see some people here, and hi to anyone new!!

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1 reply
ranc | @ranc | Jul 7, 2022

Forth stage lung cancer,took kimo,lost 40 pounds and 2 blood transfusions,no more for 7 months now having hard time breathing,can’t eat or drink or walk and headaches ,chest pain for 4days feel like Im dieing, do have oxygen on.Dr. Won’t see me told me to go to hospital ,now on my 6 year.

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2 replies
meka | @meka | Jun 23, 2022

Is the multifocal adenocarcinoma group defunct ???

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1 reply
Merry, Alumni Mentor | @merpreb | Jun 14, 2022
In reply to @sierracharlie "The first cancer was in another part of my body. As I said, it is surprisingly..." + (show)
@sierracharlie

The first cancer was in another part of my body. As I said, it is surprisingly common that people get cancer at least twice in different parts of their bodies.

Yes, the larger tumors were all in my right lung. Directed surgery was successful for the two in the lung but the surgeon couldn't get all of the other tumor adjacent to my heart. For that, they tried intensity modulated radiation therapy (IMRT), a radiation which is targeted at the cancer cells.

I was supposed to do this every weekday for six weeks but I had some complications midway through the treatment. Bottom line, they know it is still there but because it is so small, it won't show up on a CT. Protocol now for me is CT every three months. So far, it is good news because if they can see it, that means it is growing.

If that happens, I will deal with it just as I have in the past. It is so important to remain as positive as possible. I admit I had some days where it got the best of me but most of the time, I worked hard to stay positive. I am also blessed that I have a very supportive wife who has been my caretaker through all of this. On those days where I was falling down, she was always there to help pick me up. I can't say enough how helpful it is to have someone by your side as you go through this.

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@sierracharlie- Good morning and thank you for sharing your wonderfully LONGGGGGGG story! What a journey you have had! I understand the need to be positive and yes, there can be big tumbles on the way. But what choice is there?

Cancer often, nowadays, doesn't mean the end to everything in a person's life. Everyone will have some bane to their life. Lung cancer happens to be ours. Those of us on here have to know that there is life after lung cancer, and sometimes a much better life. My life is better because I changed. Changing doesn't mean losing yourself, it means that you grow and become a more experienced person.

I find that helping others keeps me humble and gives me hope. I am honored that I can touch someone and hopefully give them a better road to travel on their journey. I was sure that I would die when I got my first cancer lesion. I had 2 loving women doctors who saw me through that phase. But neither woman had had cancer.

I love the people on here, and in the whole Cancer Group. We are very special and it makes my heart sing when you help each other if I'm not around. Thank you.

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