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Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
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I am recovering from lobectomy upper right lobe. 6 weeks today. Mucinous Adenocarcinoma.. Robotic surgery, so far my recovery sounds similar to yours.. lots of numbness and nerve pain.
Definitely still feels like a tight bandage rapping around my mid-section. They said all lymph nodes were cancer free and removing the lobe got rid of the cancer. I have to have a cat scan in 4-6 months then to a pulmonologist to monitor me .. I feel very fortunate but still worried for future scan results.. you said your 7 months .. How are you feeling now .. have you had any therapy??
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1 ReactionHello mikee2all,
Astra-Zeneca does have a Tagrisso drug reimbursement plan called AZ&Me Prescription Savings Plan and you can find information and application information on their website or by searching on AZ&Me. Note however that at least for US patients that they have raised their income thresholds in 2024 for who they will provide free Tagrisso. The income requirements and other stipulations should be stated on the website. It is probably a bit of work to manage the paperwork required but the benefits of continuing to be on Tagrisso will be well worth the effort!
Good luck with the reimbursement efforts and in managing the Tagrisso side effects!
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Yes, I am in the "CAJA", their medical system and have an appointment to see their oncologist the 23rd of January. I also have a private lung cancer specialist. She is the one that put me on Tagrisso, even though I paid for it. I will find out on the 23rd is the system will continue my Tagrisso.
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1 ReactionAre you getting your diagnostics and treatment now on Costa Rica? I understand there is quite the ex-pat community there.
I have an appointment for 1st of February. Living in Costa Rica, I'll fly out a day before. I'll let you know....
Stay in touch. I have no idea how it works these days but I have vet buddies who live more than x
miles from a vet facility and they can pretty much use whoever they want for their care.
Thank you for your message and I will follow up and keep in touch.
Yes, I am in their system and am talking to them now about an appointment.
I want to stay on Tagrisso and not sure they will continue it.
Mikee are you in the VA Health system? I am not - waited too long to get coverage after discharge from the Marines, and now I don’t qualify. So I couldn’t be much help in terms of process but I know there are people who can if you need that.