Living with lung cancer - Introduce yourself & come say hi

Hello,
My name is Cindy and I am also just finding out about all this as well. I had a lung screening and they found a nodule in my upper left central lobe. Mine was just by chance as I was just setting up a new PCP as I had just moved here a year and a half ago. Turns out the nodule was there since at least 2014, but I never knew. It’s in my hospital records after a car accident, but, the biggie… they didn’t tell me or my Dr!
Well anyway, my journey started on 1-5-23 and have had the Lung screening CT, blood work, Pulmonary visit, an Endobronchoscopy and this past week I just had my PET scan. Mine and my families heads have been spinning! Good news is it hasn’t spread anywhere else! The hard part is waiting for each test result, I think. Then the beating myself up for smoking for so many years, and then turning it to planning on how to fight so I can be around for many more years. I go to Mayo and I wouldn’t go anywhere else here. They are the BEST! I hope you get the care you need and try not to focus on every little thing. (Easier said than done, I know!) Try to keep busy and take lots of long walks. It does help relax you. Best regards!

Hello Colleen! I am new to this group and I look forward to learning as much as I can. I was recently diagnosed with Adenocarcinoma of the upper right lung. I've had x-rays, CT scans and finally the biopsy - which gave me the answer. I am scheduled for a PET scan on Tuesday to determine staging. I am totally in a fog, this is all happening so fast..and a bit scared too!

Thanks for any words of wisdom!
Sandy

Hi,
I am sailaja.
I saw your post on herbal medicine Oncotame-S.
My brother in law is diagnosed with stage 4 peritoneum cancer. He is advised to take this ayurvedic medicine as no treatment available for his case in Allopathy.
It will be great if you can share feedback for herbal medicine

Thank you in advance

Thanks for the comment, I will write down questions before I go see them.

Sheri- I am not able to read CT scans. But it looks like, from what is written under the photo, there does seem to be a mass. Genetic testing takes a while for the results to come in. The gene testing should have been a part of the biopsy. Do you have those results yet? If not then call to make sure that it was done. I'm sure that your tissue sample is still available for testing if it needs to be done.

I'd make a question list and make sure that you get answers for each one. You are entitled to answers. A gene test is a necessity so there isn't a reason for it not to be done. Insist on it!

I'm sorry that your outcome was not what you had hoped. I was a heavy smoker also. Have you quit smoking yet?

Thank you for your comments, I feel better already

Waiting for results and appointments is so difficult. It’s likely that a lot is happening during this time, even though it feels like nothing is happening. The docs are coordinating and lab tests are being completed. The MRI and PET will be help to know if the cancer is contained to the lung. And the biopsy tissue is likely being tested to see exactly what type of cancer it is, and if it is expected to be responsive to certain therapies.
Hopefully they have good options for you at your next appointment! Take care, hang in there, Lisa

Looks bad

They don’t want to tell me anything until after the next 2 tests are done however all results of test are on the web through a MyChart app. Of course I don’t understand a lot so I have to research the terms. I don’t see that they ran geo testing on the biopsy and that concerns me after reading through answers on this page. That’s one of the questions I’m going to ask on Oct 10th when I go for my results. I know from the results I have adenocarcinoma.

Welcome to the lung cancer group, Sheri. Did you have suspicions of lung cancer? It's quite a shock to be told this, even if it's out of the blue. It kind of knocks you off your feet, right? Well, let me help you up. Monday I'll be celebrating 25 years of surviving lung cancer. I'll be glad to help you all I can.

You have now entered the world of cancer tests, lab tests, blood tests, and anything that they can find to test. But it will all help with deciding, with you, what kind of cancer you have and the best way to treat it.

Do you have the results of the biopsy yet? Have your doctors told you anything else or answered your questions?