Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for spikeb1 @spikeb1

I wasn’t aware that targeted therapy was so prevalent. I will ask at my next appointment but if not done, won’t request it. If I have a reoccurrence, would have it then just to see. But heck, I’m already 73.

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Hi @spikeb1. There is much hope in the lung cancer world. With new findings and advances, we are all given better outlooks. I have one of the gene mutations; ALK. The mutations are usually (but not always) found in 'younger' patients that have very few risk factors for lung cancer. Anyone with lungs can get lung cancer. Testing for biomarkers/mutations is becoming more standard, and some states are mandating that insurance companies cover the cost.
I'm glad you are doing well, post-surgery and hopefully you are free and clear now!

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Profile picture for shirleyod @shirleyod

I was diagnosed with stage 3 lung cancer in October of 2022. I have had 6 rounds of chemotherapy and 30 radiation treatments that ended in December of 22. I have been on immunotherapy (Infinzi) starting in January 2023 and should complete it at the end of the year. I have a CT scan 12/15/2023 and so far the previous scans have shown no symptoms of cancer.

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@shirleyod, I'm glad that you are doing well, and hope your latest scan looked promising too! It's nice to hear good news, hoping for a better 2024 for you.

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Profile picture for pb50 @pb50

Hi. You are in a good place here - There are a lot of us here who understand what you have been and are still going through. I had a 1.5cm mucinous Adenocarcinoma removed 7 months ago in a left lower lobectomy. Margins and lymph nodes were all clear.
So you and I are very very lucky.
How was yours discovered? Mine was picked up 5 yrs ago in a routine screening. It was only 6mm then. By last April it was 14mm so they recommended removal. I will have CTs every six months for five years so I don’t really worry about it returning without me being aware.

What kind of cancer did yours turn out to be?

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Thank you sooooo much for responding so kindly .. mind was picked up at a wellness visit when I asked for a chest x-ray. 2.1cm same type of tumor as yours. Yes , as you said , we are very lucky it seems it has been caught early .. just being able to communicate with someone that understands is a comfort.. thank you again . I’ll keep you posted on my doc visit and keep me posted on yours or if you just need to talk ..

Bernadette

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Profile picture for bernl @bernl

I was diagnosed with stage 1 lung cancer .. had a lobectomy upper right lobe. Lymph node are clear . Had surgery 2 1/2 wks ago .. waiting to see post op surgeon and oncologist.. the hardest thing for me was unable to understand what was happening to me.. No one to talk to that understood what I was feeling and going through. The waiting time for all test, biopsies and doctor appointments were like a life time to me.. Now the thought of it returning stays on your mind.. there is no support group out there for you to get help mentally.. I am positive most of the time .. need other to talk to that understand..

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Hi. You are in a good place here - There are a lot of us here who understand what you have been and are still going through. I had a 1.5cm mucinous Adenocarcinoma removed 7 months ago in a left lower lobectomy. Margins and lymph nodes were all clear.
So you and I are very very lucky.
How was yours discovered? Mine was picked up 5 yrs ago in a routine screening. It was only 6mm then. By last April it was 14mm so they recommended removal. I will have CTs every six months for five years so I don’t really worry about it returning without me being aware.

What kind of cancer did yours turn out to be?

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I was diagnosed with stage 1 lung cancer .. had a lobectomy upper right lobe. Lymph node are clear . Had surgery 2 1/2 wks ago .. waiting to see post op surgeon and oncologist.. the hardest thing for me was unable to understand what was happening to me.. No one to talk to that understood what I was feeling and going through. The waiting time for all test, biopsies and doctor appointments were like a life time to me.. Now the thought of it returning stays on your mind.. there is no support group out there for you to get help mentally.. I am positive most of the time .. need other to talk to that understand..

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Profile picture for pb50 @pb50

That is very encouraging. Warm healing thoughts coming your way - and Merry Christmas.

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Thank you and a very Merry Christmas to you.

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Profile picture for soupycampbell @soupycampbell

Just an update on my lung cancer. As you know from previous posts I had said I did not want chemo or radiation because I’m healthy and just wanted to enjoy my life. Well, I decided to go with 5 treatments of lower dose radiation and have just got results of the latest scan. The one larger on the upper lung has actually shrunk some so good news. Also in the last months I’ve had another on my lower back and now from this scan one on my higher thigh. They’re small so no worries. I’m now good to next scan in June. I’m still travelling some with my daughter and walking as much as I can depending on weather. Life is good. Merry Christmas to all and praying for all who needs it! 🙏💕
Joan Campbell

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That is very encouraging. Warm healing thoughts coming your way - and Merry Christmas.

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Just an update on my lung cancer. As you know from previous posts I had said I did not want chemo or radiation because I’m healthy and just wanted to enjoy my life. Well, I decided to go with 5 treatments of lower dose radiation and have just got results of the latest scan. The one larger on the upper lung has actually shrunk some so good news. Also in the last months I’ve had another on my lower back and now from this scan one on my higher thigh. They’re small so no worries. I’m now good to next scan in June. I’m still travelling some with my daughter and walking as much as I can depending on weather. Life is good. Merry Christmas to all and praying for all who needs it! 🙏💕
Joan Campbell

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Profile picture for spikeb1 @spikeb1

I wasn’t aware that targeted therapy was so prevalent. I will ask at my next appointment but if not done, won’t request it. If I have a reoccurrence, would have it then just to see. But heck, I’m already 73.

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Yea me too. That’s why I say I’m not having any more surgery
So…

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Profile picture for pb50 @pb50

I didn’t have an oncologist and my surgeon took out a 1.5cm tumor, tested modes and margins and everything was clean. So I didn’t do any DNA evaluation - didn’t even know to ask the question then. But the truth is I watched this one in annual ct
Screenings go from 6 to 14mm over four years. So if I were to see another one, I won’t have surgery again. Therefore I don’t care about the dna 🙂

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I wasn’t aware that targeted therapy was so prevalent. I will ask at my next appointment but if not done, won’t request it. If I have a reoccurrence, would have it then just to see. But heck, I’m already 73.

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