Living with lung cancer - Introduce yourself & come say hi

I have recently had a CT scan of lung and found 3 adenocarcinomas had grown - unfortunately my previous CT scan was 7 years prior - no one informed me that I was to have annual CT scans! Anyway, met with thoracic surgeon who does not want to do surgery or anything yet. I am not sure I am all right with that. we have scheduled a next CT scan for 6 months from now. Three of the nodules are fairly large - 9mm, 11, 13mm. I know that some docs recommend targeted radiation at this point. I do plan to have a 2nd opinion. and i have a follow-up call with the thoracic surgeon this morning. I will admit i am quite fearful about lung surgery for resection or whatever.....if anyone has thoughts on this, i would love to hear them. it feels so alone & frightening.
s michaels

My results from my CT scan on 12/15/2023 showed NO obvious findings of recurrent disease. I have had no reaction to imfinzi infusions and tolerated it very well. God is good!🙏

In December of 2022, I had a 2 cm tumor and an upper lobectomy was done. All lymph nodes were negative for spread. 6 month later CT was fine. Then in November 2023, I had a suspicious CT then a brain MRI, PET and Breast ultrasound. Also of which revealed stage 4 lung cancer spread to lymph nodes and breast. Treatable but not curable.
A MET marker was discovered and I am about to start taking Tabrecta. I am hoping this will prolong my life at least for a couple of years. Anyone else taking targeted therapy?

All of the nodes removed were negative and no treatment advised. Have had 2 follow up CTs and so far, so good. 🤞🏻

I'd like to add my welcome, @easydoesit1928. Your post definitely gives hope.

There are several members taking Tagrisso who would benefit from your experience. See these various discussions: https://connect.mayoclinic.org/group/lung-cancer/

Perhaps you have some tips to offer.

Hi @shirleyod, I look forward to your update when you get the results of your scan. How have you been doing on Infinzi?

Spike- It's up to you. Usually, DNA will stay the same if you have the same type of cancer again. I do not know if it changes with a different kind of cancer. I've had two types of lung cancer, and there wasn't a DNA test for the first. I don't know if they were doing them in 1981.

Have you been told if you will need any treatment?

I see the surgeon on the 20th then I’ll have an appointment for the oncologist after that.. Thank you for your kind words and for reaching out to me .. I am progressing well , get short of breath and my pain is definitely manageable.. just taking Tylenol . I spoke with my regular MD about support groups and they referred me to a therapist. I really wanted to talk to people who were experiencing the same medical issues as myself.. so happy I found this site ..

Hi Bernadette (@bernl), The diagnosis is usually quite a shock for all of us. I'm glad you were proactive and asked for the chest x-ray. If you didn't qualify for CT lung screening, the x-ray was a blessing that caught the tumor early. I hope your surgery recovery is manageable, and that you have the physical assistance that you need. The emotional support can be difficult. There are many people here on Mayo Connect who have been through similar circumstances, so feel safe to share what you are going through. Your primary care provider or oncologist may have some good suggestions on resources for dealing with the mental health side of the diagnosis too. Is your oncology appointment coming up?

Hi Joan (@soupycampbell), It's so good to hear from you. I'm glad that you are doing well and are able to be out enjoying your life the way that you choose. I wish you the best, and hope you continue to travel and do the things that bring you joy. Take care, and venture onward...