Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
Hello, just introducing myself, I am of Flemish-Belgian origin, emigrated 5 years ago to Phoenix, AZ, having met the Love of my Life here in 2006, and enjoying a LTT (Living Transatlantic Together) relationship of 11 years. Flying in from Brussels, went through airport cattlewalk fences of Immigration 35 times. Permanent resident now, Citizenship in the pipeline. In December, suspicious nodules and lesions were found in my right lung after an unexpected X-ray. Which turned out to be a “happy accident”, as I had no complaints at all. Further CT-scans, MRI and Biopsy revealed a 25 by 21 mm tumor in my middle right lung. Whilst my cancer was originally diagnosed as stage 2B, results of biopsy later changed to 3A, as a little lymph node was also discovered right next to the “mother tumor”, as my doctor described it. Testing just showed that, after 2 of my 3 rounds of chemo+immunotherapy, tumor already shrank to 18 by 10 mm. Cancerous Lymph node found resolved. No further metastasis since Biopsy. Pretty good news, I was blown away with happiness. Now awaiting surgery end April. Doctors said it would probably and most likely be “the end of my treatment”. Needless to say, I will have regular testing afterwards. Still need clearance from cardiology for surgery though. Having had 2 successful heart ablations 6 and 7 years ago, for irregular heartbeat’s atrial fibrillation, there is some concern. Hope approval will follow. Getting pretty nervous now about surgery, as removal of the middle lobe of my right lung could become a very likely scenario. Body 71 Years old but mind and soul is 16 years young. So, worried about length of healing process, recovery time, pain, most common side effects, etc…And best way to handle them…I am very happy about getting excellent info from my team of top-notch Doctors, but would like to learn from patient experiences as well…Any thoughts or advice are very welcome !!! Wally.
Take care, enjoy your days! Congrats on the addition to your family, the circle of life continues.
Yes sarcamatoid mesothelioma left pleural. Should go to oncology, so yet to learn of their response. Aggressive type, we have our wonderful Lord, family( had another grand girl this morning!); and time and circumstances well arranged- anything more will be welcome indeed !Its there for the taking folks
Sorry to hear this Tom, is the leak healing? Any news from the biopsy results?
Hi my name is selin ,, I just discovered my lung cancer one month ago ,, I’m in the forth stage ,, I just started my chemotherapy and radiation therapy
My biopsy resulted in a air leak, so I am waiting the lung to heal here in Mayo in Rochester. Should get fluid analysis also, but biopsy of pleura was the goal. Three days feeling like much longer, all moving toward resolution. This is a rare cancer.
Hello to everyone. My name is Cynde and I have had stage 4 lung cancer that had spread to my liver but the last ct scan show no evidence of tumor's on liver. I have been on keytruda carbo and taxol, that stopped working after a year changed treatment to Cyramza and taxotere, been doing alright with this but my white count goes down so having to get the Neulasta shot and Arensep to red count. my team has done a fabulous job of keeping me going for 2 years this march 3rd. I am having a big problem with my legs swelling up where I can not bend my leg to my knees. so started rubbing them pretty hard you could hear a popping sound but my leg swelling went down to where I could bend my legs to my knees feet pretty swollen also, now I am having a horrible itch from waist up but no rash, I have tried clairtin benadryl and all the lotions you can get for itching nothing has helped, it is driving me insane so dr, office sent in rx hydroxyzine hcl 10 mg been on that for 2 days sure hope it helps. so far still itch like crazy, has anyone that has been on cyramza and taxotere had this happen to them all I can think is I am allergic to one of these drugs any advice ? thanks and god bless all of us keep strong and ride along!
My name is Jean I was diagnosed in December. I actually had a chest X-ray as I wanted a watchman because of AFIB. I had absolutely no symptoms what so ever.Got the results of my chest X-ray on my portal, at the bottom under diagnosis it said there was a 3.1c mass on the upper left lobe of my lung. Too make a long story short had pet scan mris and every test imaginable. Decided I would have surgery but after looking at mri he found small lesion on my brain. Not sure if it is cancer or a spot from 6 years ago when I had a stroke. Decided to do 3 rounds of chemo every 3 weeks. After they will do another mri then hopefully surgery!
Thank you Colleen
I just started on it