Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Hi, I started with the atrial fibrillation with arrhythmia and atrial flutter group. I knew I had some more heart problems and was recently told by the new cardiologist that I had coronary artery disease too. Yesterday afternoon I got an answer to some of my other health issues. I also have non small cell carcinoma of my left lung. Since I don’t really know much about this yet, I kind of am just thinking wow. Because I was told about it in the late afternoon no treatments have been mentioned yet. The oncologist said he was making an appointment with a thoracic surgeon for me. I had to look up what kind of a surgeon that was which sounds kind of grim.

REPLY

In case you missed it, the latest member spotlight features mentor and member @lls8000. Find out more about Lisa, choosing hope and why she recently chose to wiggle her toes in the warm beach sand instead of her usual preference for mountain views.

– Choose hope: Meet @lls8000 https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/choose-hope-meet-lls8000/

Check out all the Member Spotlights here and follow the About Connect blog for future update: https://connect.mayoclinic.org/page/about-connect/

REPLY

This week's member spotlight features a member of the Lung Cancer group who many of you have crossed paths with. Learn more about @mamajite, her love for BTS and water taxis. Who knew?

– The hopeful realist: Meet @mamajite https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/the-hopeful-realist-meet-mamajite/

Check out all the Member Spotlights here and follow the About Connect blog for future update: https://connect.mayoclinic.org/page/about-connect/

REPLY
Profile picture for Lisa, Volunteer Mentor @lls8000

@bobca, I hope the surgery went well, and you are taking time to recover. Don't push too hard to fast. Did everything go as planned? Do you have a follow up appointment to review what was found once they were in surgery?

Jump to this post

@lls8000 Thanks for the follow up. Surgery did go well and I am recovering. Slowly but recovering. It's only been a few days. Everything went as planned and they did a wedge resection that had a tumor about the size of a grape. Took out more tissue than required to make sure they got it all. Nothing else was found and they don't feel chemo or radiation is needed. Follow up appointment is Thursday and a final on the 27th.

REPLY
Profile picture for leticiah70 @leticiah70

Hi my name is Leticia l have stage 4 lung cancer I'm on Tagrisso

Jump to this post

Welcome @leticiah70. I read on another post that you've had multiple surgeries for your lung cancer. Were those completed prior to you advancing to stage IV? Is the tagrisso tolerable for you? I'm on a different targeted therapy for ALK lung cancer. The treatments can be great but can come with some significant side effects too! Hugs.

REPLY
Profile picture for bobca @bobca

Posted here a few weeks ago after my PAT scan discovered NSCLC in my left lung. Oncologist said it's about the size of a grape and will be removed by surgery with no chemo or radiation needed. Been through every test you could imagine and now headed to surgery on Thursday. Hoping for the best and an easy recovery. I have heard some horror stories about recovery and others seem to go well. Will update after the surgery.

Jump to this post

@bobca, I hope the surgery went well, and you are taking time to recover. Don't push too hard to fast. Did everything go as planned? Do you have a follow up appointment to review what was found once they were in surgery?

REPLY
Profile picture for leticiah70 @leticiah70

Hi my name is Leticia l have stage 4 lung cancer I'm on Tagrisso

Jump to this post

@leticiah70 Hi. I’m also stage 4 lung cancer and started Tagrisso 2 weeks ago, and had first chemo. I’m doing ok so far on Tagrisso, hope you are too.

REPLY

Hi my name is Leticia l have stage 4 lung cancer I'm on Tagrisso

REPLY

Posted here a few weeks ago after my PAT scan discovered NSCLC in my left lung. Oncologist said it's about the size of a grape and will be removed by surgery with no chemo or radiation needed. Been through every test you could imagine and now headed to surgery on Thursday. Hoping for the best and an easy recovery. I have heard some horror stories about recovery and others seem to go well. Will update after the surgery.

REPLY
Profile picture for onethinkitty @onethinkitty

Hello everyone. Figured I would do this before I asked any questions. My name is Celeste. I was diagnosed with NSC lung cancer in January and had a lobectomy on February 23rd. My breathing troubles started at the end of August after having had Covid but I got my first glimpse of this at the end of September when my doctor (God bless her) ordered a chest x-ray for me and kicked off this whole thing. I'm 45 and a single mom if 3 but only 1 is still a minor. It's been a whirlwind for me but I am glad to be here.

Jump to this post

@onethinkitty, welcome Celeste, thankfully you had that chest xray! I always tell people that if they are offered one, take it! Mine was first seen on xray in an urgent care office. How’s your recovery going? Did you happen to have any biomarker testing done on the removed tumor?

REPLY
Please sign in or register to post a reply.