Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
@easydoesit1928, that’s great news! There are more and more treatments available each year and people are living longer with lung cancer. Thanks for sharing.
Hi Lisa.
For the benefit of others, I am living with after effect of lung cancer. I had surgery for a 1.5 cm mucinous adenocarcinoma in late May. The surgeon took the left lower lobe after receiving pathology report that it was malignant. All margins and nodes were clean, so stage PT1cPN0.
I have persistent rib/diaphragm pain with no insight as to why beyond “these things happen”.
That’s the short version 🙂
Hi Lisa! I was diagnosed as Stage IV and went directly to targeted therapy with no other treatments.
I would like to give hope to lung cancer patients. I was diagnosed in 2017 and am still here and plan Christmas with my family. I was given first Tarceva and now taking Tagrisso. Thank you.
Hi again @loriwt, I'm glad you found us. There are certainly other members here with gene mutated cancers; EGFR, ALK. Many gene mutation lung patients are found at later stages. Were you diagnosed at a late stage? Did you go straight to the retevmo, or did you have other treatments/surgery?
Hello! I'm Lori and I was diagnosed with NSCLC RET+ in June 2022 and started targeted therapy (Retevmo) in July 2022. Anyone else RET+ and on Retevmo or similar?
The pillow is to hold against your incision area when you cough. The pressure helps with muscle spasm. There were none on the floor when I was in hospital so my nurse nabbed one from the cardiac surgery unit 🙂
Thank you for the links. What is the pillow used for?
Jessica, you got some helpful responses from @pb50 and @spikeb1. You may also appreciate the tips shared in this related discussion:
- Robotic Lobectomy: What can I expect? What is recovery like https://connect.mayoclinic.org/discussion/hello-from-the-bluegrass-state/
At Mayo Clinic, they give lung surgery patients lung pillows that are really helpful. Micheal, @corgimenow's husband is showing off his pillow post surgery here:
- My husband had lobectomy surgery: Mayo was wonderful! https://connect.mayoclinic.org/discussion/mayo-was-wonderful/
That’s a lot of great ideas