Living with lung cancer - Introduce yourself & come say hi

Good to hear from you Burrkay. I'm familiar with the HER2 mutation in breast cancer, but have just been reading about it in lung cancer. Great news to hear that your wife is tolerating the new treatment well. How often does she have the infusions?

Hello, it has been awhile since I've been here, (other health problems) but getting better. I was told I have two kinds of lung cancer one year ago, on Jan.,
22.2016. I have plain ole lung cancer in my right lung. I have Mesothelioma in my left lung. My husband worked in the plastering business, mixing all the plaster for the job. In each batch of plaster he mixed he put 3/4 coffee can of Asbestos in each batch. Sometimes 100 batches daily, from 1955 to 1983. All I did was wash his clothes. So not much to be done for me. I am 83 years old, have been depressed for the most part of the time. I have talked to my pastor, a doctor, been on here some. I seem to be tired all the time. My last cat scan showed very little growth, Praise God! But somehow I have now a third grade kidney disease. So have been dealing with that too.Have both doctor's appointments in April, along with my heart doc, checking on my pacemaker which needs to be replaced this year. Sept, Oct or so. Can't keep track. (shortshot80)

It's been awhile! Thank you Colleen for moderating and Linda for participating as an amazing survivor of NSCLC!
My wife continues with her treatment of the trial doublet herceptin/perjeta (sponsored by Genetech); which was recommended by Mayo for her unusual stage IV lung cancer with the HERR2 mutation. She has now had 4 infusions and just today had a scan and echo gram to check her progress before continuing with her treatment next week.
As you know, her non small cell lung cancer was diagnosed in April, 2015 and she underwent a VATS bi-lobectimy of her right lung Mother's Day that year. After having previously had Cisplatin chemo and nine rounds of Opdivo, she now amazingly tolerates the new doublet well.
We pray for good reports next week.
If there is one thing we have learned from all this, it's that we now live "one day at a time"! Not planning too far out, we have booked a cruise in May with the hopes that she can tolerate being spoiled for two weeks before returning for more infusions!
God bless all the cancer patients/survivors, and God bless the good people at Mayo- Rochesrer and Mayo-Jacksonville. And God bless our local oncologist and staff here in South Carolina for ther very professional on-going care.

Thank you kicking off the introductions Linda!
Did you have any treatments after surgery?

What an amazing opportunity for lung cancer patients, lung patient survivors and loved ones to connect when dealing with this horrific disease.
I am a 10 year lung cancer survivor. I never smoked. I understand the pain, unfair blame & shame that comes with this disease! Yes, I have learned, through Mayo Clinic Researchers, that lung cancer is a disease! No one deserves additional or unnecessary battle(s) when fighting this battle. My husband stood by my hospital bed (post op.? after surgeons removed most of my left lung) and for five hours and said, "Breath, Breath, Breath!" It was the toughest thing I have ever done!

So let's connect and help each other live the best quality of life possible, ok?

I hope that by sharing my story and passion to save Lungs & Lives, we will be able to accept this disease and together help make memorable changes for Doctors, Researchers, Care Givers, Loved Ones and Ourselves!

I'm ready to blow lung cancer away, will you please help ?

Linda

Hi @llwortman @burrkay @alicantina1 @merilee @alvinw @shortshot80 @mryzuch @amws @pearlgee @cheris @annette1 @cheris @windwalker @lesbatts @major @bestcare and @sistergoldenhair

I'd like to invite you to the new group dedicated to discussions about lung cancer. It's a space where we can ask questions, share tips and learn from each other. Whether you in treatment or caring for someone with lung cancer, or you're a lung cancer survivor, please join us.

Pull up a chair and tell us a bit about yourself.