Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
Thamks for taking the time to update us @shortshot especially when you have multiple health concerns to contend with.
We have several members on Connect talking about stage 3 kidney disease as well as people managing life with a pacemaker. Let me know if you'd like to be connected to those discussions.
That's a superb list of questions for the oncologist tomorrow @burrkay. I cant think of anything to add except perhaps: what are the next steps?
I look forward to hearing how the appointment goes.
Burrkay:You will both be in my thoughts !All my bestLinda
Dear burrkay:Thank you oir your kind words. I hear about lung tragedy too often. My journey with lung cancer has taught me that researchers everywhere...even at Mayo Clinic researchers desperately need research funding, to find the best ways to properly diagnose and properly treat lung cancer .My life's passion is to introduce people of all ages to their Lungs with more fun facts as well as lung health and cancer facts. I have seen amazing growth in research and treatment since my 2008 surgery, but mute needs to be done, would you agree?I would enjoy meeting you and talking with you more about possibly speaking in your community. What do you have in mind?Thanks so muchHugs for caringLinda
Colleen:
Thank you for posting this information. Additional app Improvements along with breathing games will be launched soon!
Hopefully we can encourage people to take time out by learning how breath deep! It has helped me sleep all night, walk & run, and climb higher. It just takes practice and time.
Hugs
Linda
Thanks Colleen
We have found the report on our chart on the web and are excited to know she is much improved!
The tumor has shrunk, etc.
Here our discussion items for the doctor tomorrow:
The report is encouraging, and we are cautiously optimistic. We do have the following concerns to discuss with you tomorrow:
- Where is the tumor/s located currently?
- Are there new tumors or new changes?
- Restaging - Am I still considered Stage IV?
- Have you ever gotten a lung cancer patient to "remission"??
- "Benign flow related enhancement in right lobe of the liver"? Does this need further study?
- How long can I stay on the infusions?
- Should I now consider a port?
- Would you please send an update with the latest scans to dr Menefee at Mayo?
- Any suggestions about exercise?
- Heart monitoring since that is one of the supposed side effects of the herceptin/perjeta doublet. How close must we be monitoring it and methodology?
We watched the video and found it quite informative. Thank you for all of your hard work!
We live in a retirement community in South Carolina and have lost numerous neighbors to lung cancer. Would you consider visiting and putting on your same or similar talk for our community?
Thanks for the additional information @burrkay. So grateful your oncologist persisted and found the molecular root cause. I'll be thinking about you and your wife on Monday. Please update us when you can.
Here's information about MyBreath app that Linda mentions in the TED talk.
http://www.breathresearch.com/mybreath-app/
Here's the link to Linda's TEDxBigSky Ted talk.
- Beating the Odds: Climbing Mt. Kilimanjaro with One Lung https://www.youtube.com/watch?v=o3np0vU7FGg