Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for Lisa, Volunteer Mentor @lls8000

@lisahar, it's never easy news to hear, but there are positives in what you've found out. It sounds like the cancer was identified early.
Receiving care close to home certainly has benefits. If you are able and interested, sometimes a second opinion hospital can help to drive decisions, while still having treatments at your home hospital. I've visited with doctors at larger teaching facilities when I wasn't sure about treatments that were presented to me at my home hospital. Both sides seemed happy to work with the other, and I felt more confident in the plan. Hoping that you find some peace in your decisions. Sending hugs.

Jump to this post

@lls8000 hi, I am going to MD Anderson for my surgery. The cancer is stage 1. I think I will come out ok. I feel very positive. Thank you for your kind words.

REPLY
Profile picture for lisahar @lisahar

@lls8000 yes, I have had so many scans and a PET scan of the whole body that I think I might glow in the dark it is non-small so one cancer, which is the better of the lung cancer to have and the PET scan showed that it did not metastasized into my lymph nodes. I’m not quite sure where to get treatment yet. I’m at a good hospital right now, but there are better hospitals in Florida just further away, but thank you all bye.

Jump to this post

@lisahar, it's never easy news to hear, but there are positives in what you've found out. It sounds like the cancer was identified early.
Receiving care close to home certainly has benefits. If you are able and interested, sometimes a second opinion hospital can help to drive decisions, while still having treatments at your home hospital. I've visited with doctors at larger teaching facilities when I wasn't sure about treatments that were presented to me at my home hospital. Both sides seemed happy to work with the other, and I felt more confident in the plan. Hoping that you find some peace in your decisions. Sending hugs.

REPLY
Profile picture for mypinkheels25 @mypinkheels25

hi, i need to have chemo

Jump to this post

@mypinkheels25, While that's clearly not what any of us want, your doctors are working to give you the best possible future. Are you getting some additional time to heal from surgery prior to starting the chemotherapy?

REPLY
Profile picture for Lisa, Volunteer Mentor @lls8000

@mypinkheels25, Have they finalized your post-surgery treatment plan? What is your team recommending?

Jump to this post

hi, i need to have chemo

REPLY
Profile picture for Lisa, Volunteer Mentor @lls8000

@lisahar , I'm sorry to hear that you are adding lung cancer to your list. If they are looking at surgery, it may have been found at an early stage. That's good news. Lung cancer treatments have greatly improved over the past 10 years. Many people are diagnosed and successfully treated each year. Did you have a CT scan, and/or a PET scan to identify the cancer?

Jump to this post

@lls8000 yes, I have had so many scans and a PET scan of the whole body that I think I might glow in the dark it is non-small so one cancer, which is the better of the lung cancer to have and the PET scan showed that it did not metastasized into my lymph nodes. I’m not quite sure where to get treatment yet. I’m at a good hospital right now, but there are better hospitals in Florida just further away, but thank you all bye.

REPLY
Profile picture for Lisa, Volunteer Mentor @lls8000

@mypinkheels25, Have they finalized your post-surgery treatment plan? What is your team recommending?

Jump to this post

hi, i have video call appointment with my oncology tomorrow. will let you know as soon as i talk to her.

REPLY
Profile picture for Lisa, Volunteer Mentor @lls8000

@lisahar , I'm sorry to hear that you are adding lung cancer to your list. If they are looking at surgery, it may have been found at an early stage. That's good news. Lung cancer treatments have greatly improved over the past 10 years. Many people are diagnosed and successfully treated each year. Did you have a CT scan, and/or a PET scan to identify the cancer?

Jump to this post

@lisahar , I just saw your other note, confirming that you had a biopsy confirming the cancer, and PET scan. I know being referred to a surgeon is scary, but that likely tells us that they don't think the cancer has spread, and it's been identified at an early stage when it has the greatest chance at a cure.
Once you see the surgeon, will you be reaching out to your cardiologist too? It may be good to have them in the loop.

REPLY
Profile picture for mypinkheels25 @mypinkheels25

i just had lobectomy too about 2 weeks ago, you're lucky you didn't need anymore treatment, i still need to do some treatments. very sad.

Jump to this post

@mypinkheels25, Have they finalized your post-surgery treatment plan? What is your team recommending?

REPLY
Profile picture for lisahar @lisahar

Hi, I started with the atrial fibrillation with arrhythmia and atrial flutter group. I knew I had some more heart problems and was recently told by the new cardiologist that I had coronary artery disease too. Yesterday afternoon I got an answer to some of my other health issues. I also have non small cell carcinoma of my left lung. Since I don’t really know much about this yet, I kind of am just thinking wow. Because I was told about it in the late afternoon no treatments have been mentioned yet. The oncologist said he was making an appointment with a thoracic surgeon for me. I had to look up what kind of a surgeon that was which sounds kind of grim.

Jump to this post

@lisahar , I'm sorry to hear that you are adding lung cancer to your list. If they are looking at surgery, it may have been found at an early stage. That's good news. Lung cancer treatments have greatly improved over the past 10 years. Many people are diagnosed and successfully treated each year. Did you have a CT scan, and/or a PET scan to identify the cancer?

REPLY
Profile picture for bobca @bobca

@lls8000 Thanks for the follow up. Surgery did go well and I am recovering. Slowly but recovering. It's only been a few days. Everything went as planned and they did a wedge resection that had a tumor about the size of a grape. Took out more tissue than required to make sure they got it all. Nothing else was found and they don't feel chemo or radiation is needed. Follow up appointment is Thursday and a final on the 27th.

Jump to this post

i just had lobectomy too about 2 weeks ago, you're lucky you didn't need anymore treatment, i still need to do some treatments. very sad.

REPLY
Please sign in or register to post a reply.