Living with lung cancer - Introduce yourself & come say hi

Going through chemoradition for ls 3 sclc. Has anyone had prophylactic brain radiation with success?

Goodness! I can certainly relate. I was diagnosed in April 2018, had a lobectomy removing the quadrant in which the tumor was contained, declined adjuvant chemo, and opted for surveillance. I had good scans every three months for almost two years when CT followed by PET and biopsy showed metastitis to the adrenal gland and brain. I had gamma knife to the brain and started on the targeted treatment, Tagrisso the spring of 2020. I was on 80 mg for several months, but was not tolerating and was tapered to 60mg and then 40mg. The Tagrisso has been successful for me now thus far. I go every three months for CT abdomen/chest/pelvis, brain MRI, bloodwork, and doctor visits; and my reports continue to be “stable” which is a word we love to hear. I thank God for my doctors at Mayo Clinic, for my treatment, and my husband who is with me every step of the way. I will be 76 in January. I am tired much of the time, which I attribute to a combination of cancer, treatment, and age.

Yes

Goodness! I can certainly relate. I was diagnosed in April 2018, had a lobectomy removing the quadrant in which the tumor was contained, declined adjuvant chemo, and opted for surveillance. I had good scans every three months for almost two years when CT followed by PET and biopsy showed metastitis to the adrenal gland and brain. I had gamma knife to the brain and started on the targeted treatment, Tagrisso the spring of 2020. I was on 80 mg for several months, but was not tolerating and was tapered to 60mg and then 40mg. The Tagrisso has been successful for me now thus far. I go every three months for CT abdomen/chest/pelvis, brain MRI, bloodwork, and doctor visits; and my reports continue to be “stable” which is a word we love to hear. I thank God for my doctors at Mayo Clinic, for my treatment, and my husband who is with me every step of the way. I will be 76 in January. I am tired much of the time, which I attribute to a combination of cancer, treatment, and age.

I too, take a targeted therapy, an oral capsule, every morning. I feel quite well but am tired. Hard to know if it’s the lung cancer, the medicine or just getting older. I am 72. It sounds as though you are doing well.

Hi, my name is Kim, I’m 52, happily married, with 2 children in their 30’s and 5 grandchildren. Unfortunately, I was a smoker for over 30 years and quit last year. 2 months ago I was diagnosed with stage 3 non small cell carcinoma lung cancer, it is in my lymph nodes so surgery and radiation is not an option at this time. Fortunately, I have a targeted gene, BRAF, and will be taking two chemo pills a day to begin killing this monster inside me. I have been trying for two frustrating weeks to get my medicine and was just blessed this morning with a liaison to help me get the medicine.
I am from Fairbanks, Alaska, born and raised, and was diagnosed with pneumonia there, however, my mother and my instincts told me to seek a second opinion and so I came to the Mayo Clinic in Phoenix where I was diagnosed with this cancer. I went back home to Fairbanks to begin treatment, however, we were all convinced that I would get better care at the Mayo Clinic so my mother and I are back in Phoenix waiting for the meds to come so I can begin treatment here. It’s been a rollercoaster of emotions to say the least, and this is only the beginning. I thought I could take care of this on my own with the support of my family and friends but already I know that I cannot, I am going to need the help of others who are experiencing the same monster within them in order to conquer this thing, and so I am starting here and reaching out for help. I’ve never felt so vulnerable and not in control and I am scared! Any and all advice is appreciated.

I was diagnosed with Stage IIB lung cancer in 2022. I have never smoked or worked around toxic materials. My lung cancer was discovered when I had a scan done prior to having a heart scan in preparation for a heart procedure. I worried about contracting other types of cancer, however never lung cancer. I have since learned that if you have lungs you can get lung cancer.
I am fortunate that I am not young, 76 years old, and don’t have a young family to raise. I live near a branch of Stanford Medical Center where I receive my medical care, which is excellent.
I am currently receiving targeted therapy, a daily pill. The main side-effect is fatigue and lack of energy.

I was diagnosed with Stage IIB lung cancer in 2022. I have never smoked or worked around toxic materials. My lung cancer was discovered when I had a scan done prior to having a heart scan in preparation for a heart procedure. I worried about contracting other types of cancer, however never lung cancer. I have since learned that if you have lungs you can get lung cancer.
I am fortunate that I am not young, 76 years old, and don’t have a young family to raise. I live near a branch of Stanford Medical Center where I receive my medical care, which is excellent.
I am currently receiving targeted therapy, a daily pill. The main side-effect is fatigue and lack of energy.