Living with lung cancer - Introduce yourself & come say hi
Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
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Posted here a few weeks ago after my PAT scan discovered NSCLC in my left lung. Oncologist said it's about the size of a grape and will be removed by surgery with no chemo or radiation needed. Been through every test you could imagine and now headed to surgery on Thursday. Hoping for the best and an easy recovery. I have heard some horror stories about recovery and others seem to go well. Will update after the surgery.
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1 Reaction@onethinkitty, welcome Celeste, thankfully you had that chest xray! I always tell people that if they are offered one, take it! Mine was first seen on xray in an urgent care office. How’s your recovery going? Did you happen to have any biomarker testing done on the removed tumor?
@onethinkitt I had a lobectomy on my upper left lung on February 24. It was confirmed as first stage , they checked 30 lymph nodes and all came back negative. good to hear your story.
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1 Reaction@onethinkitty Sorry to hear of your lung cancer, which I have too. Good your doctor caught it! I have found this Mayo support to be helpful and informative. Hugs.
Hello everyone. Figured I would do this before I asked any questions. My name is Celeste. I was diagnosed with NSC lung cancer in January and had a lobectomy on February 23rd. My breathing troubles started at the end of August after having had Covid but I got my first glimpse of this at the end of September when my doctor (God bless her) ordered a chest x-ray for me and kicked off this whole thing. I'm 45 and a single mom if 3 but only 1 is still a minor. It's been a whirlwind for me but I am glad to be here.
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3 Reactions@dianelivingston47, I’m so sorry to read this Diane. Hugs to you, but know that many of us live with stage 4 mutation based cancers. Targeted therapies have helped many of us live longer productive lives. I’m close to six years post-diagnosis.
Hoping that the Tagrisso continues to be kind to you.
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3 ReactionsI’m in Sacramento. I have sought any second opinions yet but seems like since your docs can’t agree it might be beneficial for you. Don’t know much about UCD Cancer care. Maybe do a search on them and Stanford and reach out to their cancer centers to ask how to get 2nd opinion. From what I understand, getting 2nd opinions is pretty common.
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1 Reaction@bobca I assume this is a VAT (video assisted thoracic surgery). I had my first wedge resection to right upper lobe (at age 80) and I was driving my car a week later. They want you to cough after so you will have pain medication for that. I also spent two nights in the hospital. Best wishes.
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1 ReactionI introduced myself a couple of weeks ago. Diagnosed with Stage-1A NSCLC in January. Had all the tests and now scheduled for surgery either 3/12 or 3/19 TBD. Met with the surgeon yesterday who impressed my wife and I which is good. Travelling out of state for the surgery is not comfortable but considering this surgeon does this same procedure every day of the week is comforting. Not sure what to expect after robotic wedge resection. Dr said I would be sore, but back to close to normal after 3 weeks. Anyone else with experience in recovery that could help set expectations would be appreciated. They said two days in the hospital then home. 76 year old male.
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4 Reactions@dianelivingston47
It is stage 4 nsclc it has spread to numerous parts of my body, mostly bones but also to brain and other lung. Am on Tagrisso and will also have Zometa as soon as my dental work is done.
Have taken Tagrisso for a week and no side effects yet.
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