Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

My biopsy resulted in a air leak, so I am waiting the lung to heal here in Mayo in Rochester. Should get fluid analysis also, but biopsy of pleura was the goal. Three days feeling like much longer, all moving toward resolution. This is a rare cancer.

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Hello to everyone. My name is Cynde and I have had stage 4 lung cancer that had spread to my liver but the last ct scan show no evidence of tumor's on liver. I have been on keytruda carbo and taxol, that stopped working after a year changed treatment to Cyramza and taxotere, been doing alright with this but my white count goes down so having to get the Neulasta shot and Arensep to red count. my team has done a fabulous job of keeping me going for 2 years this march 3rd. I am having a big problem with my legs swelling up where I can not bend my leg to my knees. so started rubbing them pretty hard you could hear a popping sound but my leg swelling went down to where I could bend my legs to my knees feet pretty swollen also, now I am having a horrible itch from waist up but no rash, I have tried clairtin benadryl and all the lotions you can get for itching nothing has helped, it is driving me insane so dr, office sent in rx hydroxyzine hcl 10 mg been on that for 2 days sure hope it helps. so far still itch like crazy, has anyone that has been on cyramza and taxotere had this happen to them all I can think is I am allergic to one of these drugs any advice ? thanks and god bless all of us keep strong and ride along!

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My name is Jean I was diagnosed in December. I actually had a chest X-ray as I wanted a watchman because of AFIB. I had absolutely no symptoms what so ever.Got the results of my chest X-ray on my portal, at the bottom under diagnosis it said there was a 3.1c mass on the upper left lobe of my lung. Too make a long story short had pet scan mris and every test imaginable. Decided I would have surgery but after looking at mri he found small lesion on my brain. Not sure if it is cancer or a spot from 6 years ago when I had a stroke. Decided to do 3 rounds of chemo every 3 weeks. After they will do another mri then hopefully surgery!

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@colleenyoung

I can understand your fear about the yeast infection returning with the next chemo. Chemo weakens your immune system, making you more suspectible for it to return. Your chemo nurse may have some good tips to help you prevent the yeast infection (candidiasis of the skin) from returning. I might ask about:
– how to keep skin dry
– if taking a probiotic would help
– does diet help, like reducing sugar

I'll be thinking of you on Thursday.

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Thank you Colleen

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@colleenyoung

@lmd1, you may wish to also join this discussion:
– Has anyone taken the targeted therapy osimertinib (Tagrisso)? https://connect.mayoclinic.org/discussion/chemo-tab/

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I just started on it

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@ladycricket60

The yeast infection was so very painful it was raw and blisters, fidget a salve prescribed for it that helped but scared it will come back again this week.

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I can understand your fear about the yeast infection returning with the next chemo. Chemo weakens your immune system, making you more suspectible for it to return. Your chemo nurse may have some good tips to help you prevent the yeast infection (candidiasis of the skin) from returning. I might ask about:
– how to keep skin dry
– if taking a probiotic would help
– does diet help, like reducing sugar

I'll be thinking of you on Thursday.

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The yeast infection was so very painful it was raw and blisters, fidget a salve prescribed for it that helped but scared it will come back again this week.

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@colleenyoung

@ladycricket60, I can imagine getting the diagnosis of lung cancer was a surprise. When is it not, right? I hope the yeast infection under the breasts has cleared up. Did you have chemo this past week? How are you doing?

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NoI had a low grade fever so had to goon antibiotic. Am scheduled for this Thursday again.

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I was wanting to get a watchman as I haveAFIB and my Eloquis was costing me $300 for 2 months..Talked to heart doctor and had chest X-ray. This was in November and showed a 3.5 mass on upper left lobe.Since then I have had neumerous tests including pet scan breathing test and mri on brain plus lung biopsy. Saw a small lesion On my brain but could be a spot from a stroke I had a few years ago. Am having3 different types of chemo for a total of 6 times then mri and hopefully surgery

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@colleenyoung

Hi @tomshepherd, here is a short list of some of the discussions related to mesothelioma that may interest you:
– Any information on Biphasic mesothelioma response to immunotherapy https://connect.mayoclinic.org/discussion/any-information-on-biphasic-mesothelioma-response-to-immunotherapy/
– SMART protocol for mesothelioma https://connect.mayoclinic.org/discussion/smart-protocol-for-mesothelioma/
– Treatment Options for Mesothelioma https://connect.mayoclinic.org/discussion/mesothelioma/

Tom, did you have your video consult? May I ask what you learned?

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HiColleen yes Friday. Good visit with surgeon, looking to be at Rochester early Wednesday for biopsy of pleura, said to be “studded” with mesothelioma areas, but so far not gone beyond the pleura. He will drain again and install a catheter so I can do that at home. However, the ultrasound guided needle drain shows a few pockets of fluid, so it’s complicated now. I will reply here once I have consulted with dr on that matter, not finding that on the drain/scan summary, done by a different person at Mayo. If it proceeds, have to await the outcome of the biopsy before further plans. I am getting maximum support from family and PCP. VERY encouraged being in the care of Mayo personnel, thanks for addressing my plight

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