Anyone waiting for liver transplant and diagnosed with liver cancer?
Good Day All,
I am wondering if anyone is in a similar situation. I have cirrhosis with good liver function. I was diagnosed with HCC and the tumor was treated with ablation. It has not recurred, at least not yet. It is my understanding that there is a 70% chance there will be more cancer due to a Cirrhotic liver. I am currently status 7 on the transplant list for a liver as I need to wait the required six months to gain MELD score exception points for the HCC. I feel very fortunate to have this time as this has been going on for the last three years now. However, I am worried about the cancer coming back and also unsure about a transplant if it does not come back. Just wondering if any of you are in or have been in a similar situation and have some encouragement. Thanks for listening.
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Welcome, @rwilliams1152. Did you have the ablation? Are you also on the waitlist for a transplant?
I hope you hav you liver transplant and are doing well. My husband is waiting the the six months period to get the MELD exeptions points. His case is similar as yours. Sending you my best wishes !
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2 ReactionsI am in the same situation. Getting an ablation in a week or two. And then the 6 months wait. I’m sure if the cancer comes back they will do another ablation. Hang in there you will be fine. Prayers to you. Rick
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4 ReactionsGood morning!
I had a liver transplant in 2020. I too had liver cancer. They observed the tumor for a few months and it continued to grow I had 2 chemo embolizations. MRI results was difficult to determine if it got it all so we moved forward with transplant. My oldest daughter gave me part of her liver.
Now, my brother is going through the same thing. He received the Y90 radiation and is being evaluated for a liver transplant.
Wishing you the very best care
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1 ReactionUniversity of Pennsylvania. 30 minute travel
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2 Reactions@rockofhudson, any update? How are you doing?
Hi Colleen,
Yes I've had several years ago.
Now they are doing quarterly MRI's since the discovery of the tumor 2 1/2 years ago.
They biopsied that to confirm it was cancerous but no other liver biopsies have been done for years.
Thanks
Larry
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3 ReactionsHi @rockofhudson (love the username by the way), Sometimes retirement has different plans. Have you had a liver biopsy done before? Any questions before for your upcoming appointment?
Welcome @melborn09. See this article from Mayo Clinic listing the various treatment options for:
- Hepatocellular carcinoma https://www.mayoclinic.org/diseases-conditions/hepatocellular-carcinoma/cdc-20354552
What treatment plan is being suggested for your husband? How are you doing?
@phillydawg, It's good to hear that treatment has gained you some exception points and that things are looking hopeful for you getting your liver transplant! I guess that you know that the waiting time is anyone's guess and that it could happen sooner - or - later that the doctor suggested time.
I found a discussion that I want to be sure that you see because it contains some very helpful information from other members about how they prepared in advance for the transplant. Your comments, questions, and your own helpful tips are always welcome:
- Waiting for the Call: What needs to get done at home before you go?
https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
Phillydawg, Where will you go for your transplant? Does it involve travel and lodging?
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