Anyone waiting for liver transplant and diagnosed with liver cancer?

Posted by parrot53 @parrot53, Nov 8, 2022

Good Day All,
I am wondering if anyone is in a similar situation. I have cirrhosis with good liver function. I was diagnosed with HCC and the tumor was treated with ablation. It has not recurred, at least not yet. It is my understanding that there is a 70% chance there will be more cancer due to a Cirrhotic liver. I am currently status 7 on the transplant list for a liver as I need to wait the required six months to gain MELD score exception points for the HCC. I feel very fortunate to have this time as this has been going on for the last three years now. However, I am worried about the cancer coming back and also unsure about a transplant if it does not come back. Just wondering if any of you are in or have been in a similar situation and have some encouragement. Thanks for listening.

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Profile picture for rwilliams1152 @rwilliams1152

Hello Coleen, abalation December 3rd. Then I assume I will get on the list after I wait six months. Still trying to figure out process. Rick

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All the best tomorrow, @rwilliams1152. If you don't get answers to your questions about the process during the appointment tomorrow, do you have a transplant social worker you can contact?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome, @rwilliams1152. Did you have the ablation? Are you also on the waitlist for a transplant?

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Hello Coleen, abalation December 3rd. Then I assume I will get on the list after I wait six months. Still trying to figure out process. Rick

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@rwilliams1152, I will be thinking of you this week. I hope that all goes well.

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Thank You Rosemary. That’s really nice of you. Rick

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Profile picture for rwilliams1152 @rwilliams1152

I am having my ablation on December 3rd. I am waiting for my Doctor to turn in all paperwork for a transplant. I understand it will take six months to get on the list. Rick

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@rwilliams1152, I will be thinking of you this week. I hope that all goes well.

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I am having my ablation on December 3rd. I am waiting for my Doctor to turn in all paperwork for a transplant. I understand it will take six months to get on the list. Rick

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Profile picture for rwilliams1152 @rwilliams1152

I am in the same situation. Getting an ablation in a week or two. And then the 6 months wait. I’m sure if the cancer comes back they will do another ablation. Hang in there you will be fine. Prayers to you. Rick

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Welcome, @rwilliams1152. Did you have the ablation? Are you also on the waitlist for a transplant?

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I hope you hav you liver transplant and are doing well. My husband is waiting the the six months period to get the MELD exeptions points. His case is similar as yours. Sending you my best wishes !

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I am in the same situation. Getting an ablation in a week or two. And then the 6 months wait. I’m sure if the cancer comes back they will do another ablation. Hang in there you will be fine. Prayers to you. Rick

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Good morning!
I had a liver transplant in 2020. I too had liver cancer. They observed the tumor for a few months and it continued to grow I had 2 chemo embolizations. MRI results was difficult to determine if it got it all so we moved forward with transplant. My oldest daughter gave me part of her liver.
Now, my brother is going through the same thing. He received the Y90 radiation and is being evaluated for a liver transplant.
Wishing you the very best care

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@phillydawg, It's good to hear that treatment has gained you some exception points and that things are looking hopeful for you getting your liver transplant! I guess that you know that the waiting time is anyone's guess and that it could happen sooner - or - later that the doctor suggested time.
I found a discussion that I want to be sure that you see because it contains some very helpful information from other members about how they prepared in advance for the transplant. Your comments, questions, and your own helpful tips are always welcome:
- Waiting for the Call: What needs to get done at home before you go?
https://connect.mayoclinic.org/discussion/waiting-for-the-call-what-needs-to-get-done-at-home-before-you-go/
Phillydawg, Where will you go for your transplant? Does it involve travel and lodging?

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University of Pennsylvania. 30 minute travel

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