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Anyone waiting for liver transplant and diagnosed with liver cancer?

Posted by parrot53 @parrot53, Nov 8, 2022

Good Day All,
I am wondering if anyone is in a similar situation. I have cirrhosis with good liver function. I was diagnosed with HCC and the tumor was treated with ablation. It has not recurred, at least not yet. It is my understanding that there is a 70% chance there will be more cancer due to a Cirrhotic liver. I am currently status 7 on the transplant list for a liver as I need to wait the required six months to gain MELD score exception points for the HCC. I feel very fortunate to have this time as this has been going on for the last three years now. However, I am worried about the cancer coming back and also unsure about a transplant if it does not come back. Just wondering if any of you are in or have been in a similar situation and have some encouragement. Thanks for listening.

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parrot53 | @parrot53 | Nov 20, 2022
In reply to @colleenyoung "@parrot53, in addition to the helpful responses you've already received, I think @karmamamma @contentandwell @kathycaudle may..." + (show)
@colleenyoung

@parrot53, in addition to the helpful responses you've already received, I think @karmamamma @contentandwell @kathycaudle may have experiences to add.

Parrot, are you receiving cancer treatments at the moment for hepatocellular carcinoma (HCC)?

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Not currently. I had microwave ablation in August 22. Currently on transplant waiting list inactive to accrue exception points for MELD score due to HCC.

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Colleen Young, Connect Director | @colleenyoung | Nov 20, 2022

@parrot53, in addition to the helpful responses you've already received, I think @karmamamma @contentandwell @kathycaudle may have experiences to add.

Parrot, are you receiving cancer treatments at the moment for hepatocellular carcinoma (HCC)?

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1 reply
parrot53 | @parrot53 | Nov 10, 2022

Thank you for listening. It is comforting to know others are going through the same thing. I am so glad to know you are doing well and I am so grateful for your encouragement. I wish you all the very best. We are so lucky to have such wonderful care teams and to live in an age where these miracles can take place.

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1 reply
eparker6 | @eparker6 | Nov 9, 2022

Hello parrot53,
I too was in a similar situation-cirrhosis and cancer. Cancer was treated with ablation and TACE. Cancer did not recur. This was 1/2021. After all testing was completed, I too waited 6 months for the exception points. It can be scary to wait and see if the cancer will show up again, but the 6 months went quickly for me. Have faith!
I arrived in AZ January 2022. I waited 3 1/2 months and was transplanted 3/2022.
You can do it!! You are not alone. So many people have been through this and some with similar situations. There is a Mayo Liver Support group on Zoom that you could join. It helps to talk to people that are waiting for transplant and those that have already had their transplants. Your Mayo contact can probably give you the information. Stay strong!

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arqui02000 | @arqui02000 | Nov 8, 2022

this was my situation on 2020 the cancer show out and also doctors treat the cancer with ablation then because my old liver has not more tumors and the tumor mesure not exceed in the permit level then they refer me to Mayo Clinic in Arizona and I wait just 2 month and they transplanted a new one. A doctor told me when the cancer shows out my waiting list was shortened because this situation required transplant immediately so you have to be grateful because you will have your transplant soon. I had the same situation as you describe above

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