Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

JK | @contentandwell | Mar 14, 2020

In reply to @tjgisewhite "@contentandwell They also base it on how many people are on your list according to your..." + (show)

@tjgisewhite As I said, I do know of course that blood type is part of the screening of whom gets an available liver, but I thought from your post that there might be other criteria that transplant centers can be a bit subjective with. My MELD would probably have gone into the 30s within a few weeks of getting a liver, I had taken a serious turn for the worse. I always wonder if even though my MELD did not reflect that, they could make that decision. When my liver was dissected it was approaching being totally non-functional. Something that was said made me wonder if they did have some leeway there.
JK

Tammy | @tjgisewhite | Mar 14, 2020

@contentandwell They also base it on how many people are on your list according to your blood type.

JK | @contentandwell | Mar 14, 2020

In reply to @tjgisewhite "Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at..." + (show)

@tjgisewhite What else do they base who gets the next available liver besides MELD? Of course I know blood type and size, but are there other things? If so I was not aware of them but I found it surprising that I got my transplant at MELD 28 when they were generally transplanting at MELDS in the 30s in my region.

@racing212 Good luck with the testing. Please let us know how it goes.
JK

Rosemary, Volunteer Mentor | @rosemarya | Mar 14, 2020

In reply to @racing212 "I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday" + (show)

@racing212, I'll be thinking about you. Hope all goes well.

khh | @khh | Mar 14, 2020

In reply to @rosemarya "I just came up on this Q & A - so grab a quick lunch, because..." + (show)

Is there anything overall that is recommended for people with our issues to do differently than following the rec for immunocompromised individuals?

khh | @khh | Mar 14, 2020

In reply to @racing212 "I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday" + (show)

Wish you the best! I had no idea how many people were going through this.

khh | @khh | Mar 14, 2020

In reply to @tjgisewhite "Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at..." + (show)

Thank you for your input. I hope you are doing well.

khh | @khh | Mar 14, 2020

In reply to @seahorstmayo "Unfortunately, the MELD is what they look at. I believe that it is the only objective..." + (show)

Thank you for the response. It seems everyone is saying the same thing.

racing212 | @racing212 | Mar 14, 2020

I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday

Tammy | @tjgisewhite | Mar 14, 2020

In reply to @khh "Thank you for your input. I can see so many of you have had different issues..." + (show)

Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at the Mayo facility here in Jacksonville, FL. In FL, your MELD score has a lot to do with you being qualified or not for a liver transplant. My MELD score was 23. Of course, that is not the only thing they base it on, but it is certainly factored in there. I wish you the best of luck.