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Liver transplant - Let's support each other

Transplants | Last Active: 3 days ago | Replies (1572)

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@rosemarya

@suzeaz, I also use age as a reason for many things! You make a good point that we should talk to our doctors, especially when taking these medicines, about our bothersome symptoms. Thank you for the reminder.
Sometimes I have been told that it (the symptom) is something I will adjust to, ot that I just need to live with, but at least I know that my transplanted organs are being cared for.
When my prograf is out of range I usually feel anxious and jittery and have a difficult time focusing on a task. I remember a time when I could not pull my car into one of 3 connected parking spaces in a parking lot. Another time I nearly went thru a red light at a busy intersection. Fortunately my husband was there to take over the driving. I called my transplant nurse as soon as the office opened. Labs and reduction of prograf came next.
Let us know what your doctor suggests.

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Replies to "@suzeaz, I also use age as a reason for many things! You make a good point..."

Yes, I also have had issues with focus. Having been on Prograf since the liver transplant and attributed some of those issues with a slight cognitive decline. My family, friends and I noticed a significant improvement with the dramatic drop in dosage.