1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Tammy | @tjgisewhite | Mar 14, 2020

@contentandwell They also base it on how many people are on your list according to your blood type.

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2 replies
JK | @contentandwell | Mar 14, 2020
In reply to @tjgisewhite "Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at..." + (show)
@tjgisewhite

Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at the Mayo facility here in Jacksonville, FL. In FL, your MELD score has a lot to do with you being qualified or not for a liver transplant. My MELD score was 23. Of course, that is not the only thing they base it on, but it is certainly factored in there. I wish you the best of luck.

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@tjgisewhite What else do they base who gets the next available liver besides MELD? Of course I know blood type and size, but are there other things? If so I was not aware of them but I found it surprising that I got my transplant at MELD 28 when they were generally transplanting at MELDS in the 30s in my region.

@racing212 Good luck with the testing. Please let us know how it goes.
JK

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2 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Mar 14, 2020
In reply to @racing212 "I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday" + (show)
@racing212

I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday

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@racing212, I'll be thinking about you. Hope all goes well.

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khh | @khh | Mar 14, 2020
In reply to @rosemarya "I just came up on this Q & A - so grab a quick lunch, because..." + (show)
@rosemarya

I just came up on this Q & A - so grab a quick lunch, because it is today-

Tue, Mar 10, 2020
2:30pm to 3:00pm CT
Video Q&A - Do you have questions about COVID-19?
https://connect.mayoclinic.org/webinar/video-qa-do-you-have-questions-about-covid-19/

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Is there anything overall that is recommended for people with our issues to do differently than following the rec for immunocompromised individuals?

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1 reply
khh | @khh | Mar 14, 2020
In reply to @racing212 "I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday" + (show)
@racing212

I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday

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Wish you the best! I had no idea how many people were going through this.

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khh | @khh | Mar 14, 2020
In reply to @tjgisewhite "Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at..." + (show)
@tjgisewhite

Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at the Mayo facility here in Jacksonville, FL. In FL, your MELD score has a lot to do with you being qualified or not for a liver transplant. My MELD score was 23. Of course, that is not the only thing they base it on, but it is certainly factored in there. I wish you the best of luck.

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Thank you for your input. I hope you are doing well.

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khh | @khh | Mar 14, 2020
In reply to @seahorstmayo "Unfortunately, the MELD is what they look at. I believe that it is the only objective..." + (show)
@seahorstmayo

Unfortunately, the MELD is what they look at. I believe that it is the only objective way they have. I was in the same boat. I only got a transplant after developing a tumor in my liver. Wish I could have better news.

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Thank you for the response. It seems everyone is saying the same thing.

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racing212 | @racing212 | Mar 14, 2020

I go to the mayo in Rochester mn tomorrow for more testing monday and Tuesday

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2 replies
Tammy | @tjgisewhite | Mar 14, 2020
In reply to @khh "Thank you for your input. I can see so many of you have had different issues..." + (show)
@khh

Thank you for your input. I can see so many of you have had different issues along the way. It really helps to hear and be aware of what I may come across. Thank you again.
Karen

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Hi Karen. My name is Tammy. On December 16th, 2019, I had a liver transplant at the Mayo facility here in Jacksonville, FL. In FL, your MELD score has a lot to do with you being qualified or not for a liver transplant. My MELD score was 23. Of course, that is not the only thing they base it on, but it is certainly factored in there. I wish you the best of luck.

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2 replies
seahorstmayo | @seahorstmayo | Mar 14, 2020
In reply to @khh "That’s one thing I was pondering. I’m like the dead walking but my MELD stays the..." + (show)
@khh

That’s one thing I was pondering. I’m like the dead walking but my MELD stays the same! It’s insane. You said it’s mandatory to wait 6 months after getting a tumor? Is that when it is diagnosed by scans or biopsy or what?
Thank you, Karen

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Mine was found in a CT scan. They took care of the tumor right away, but the six month wait is to make you don't develop cancer elsewhere making you ineligible for a transplant.

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