Liver transplant - Let's support each other

I was at Mayo MN over the week and my meld score went up and I also was told that I have kidney cancer

@jackie421blfdgurl, I am in Kentucky and my transplant Center in in Minnesota (750 miles). I can understand how the distance and travel planning can complicate things. I rely on my local primary care doctor who is willing to work in cooperation with my Transplant team at Mayo in MN.
Like you, I found myself at home and alone in a world on non-transplant family and friends. I find great comfort and companionship in the interaction with others who are like me on Connect. I enjoy learning from each other and supporting each other. I hope that you will feel the same.
I am sharing a link to some immunosuppressant medicine and side effects for you to look at. It is going to be your doctors who regulate and advise you about your meds.
Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
When is your MRI? Is it local? or do you need to travel to the transplant center?
What is the status of your swelling and pain?

This was very helpful

Thanks

Yes MRI was complicated yesterday my doctor already has report but now needs the disk. Don’t know anything. But I will get her the disk we have an appointment nx
Thursday. Thanks for asking. I am praying a pill will solve this.

@jackie421blfdgurl, I hope that you get satisfactory results from your MRI. Is it this week?
I found a discussion for you -
stomach swelling after liver transplant four years ago
https://connect.mayoclinic.org/discussion/stomach-swelling-after-liver-transplant-four-years-ago/

Transplant done October 2020. Transplant went well came home from hospital two mos.later. I lost a
Considerate amount of weight. Still working on building up my strength. My stomach area was very soft
And almost flat, very flat as I lay on my back. But two to threes ago my top belly is swollen and surgery site where the new liver is located is also swollen and tender,if I punch on the spot it hurts. I am going for a
MRI but that is not scheduled for another week, any advice

What really struck me about the article is that I wasn’t told about these potential diseases that are so prevalent post transplant. My transplant team is awesome, and our nutritionist informative. But I think it’s a disservice to have not been fully transparent. I’ve never had high blood pressure, high lipid counts, or high glucose until post transplant. I’m now being even more diligent on healthy eating and exercise so my labs are improving. I’m glad your diabetes is in remission!

@athenalee, @tgm512500, @sue6175, @jackie421blfdgurl, @contentandwell, and anyone who is interested

I have located a discussion where the topic of immunosuppressant medications can reach All of our transplant members (not limited to, liver patients at this current discussion title suggests).
It begins:
Weight gain? Hair loss? Headaches? Never missed a beat? What has your experience with transplant medications been? Have you developed a methods to deal with a side-effect? Have your meds changed at all over time? What advice do you have for others in our community that may make their experience better?

Transplant anti-rejection medications. What's your advice?
https://connect.mayoclinic.org/discussion/your-anti-rejection-medications/
@athenalee, Would you like to share your article there?

Hello and thank you. Fortunately not on prednisone...allergic. But, I’ve read that Tacrolimus and other calcineurin inhibitors are linked to osteoporosis, but how seems to be a question. I offer the attached article for the group, as I found it one of the best on post transplant complications.