Liver transplant - Let's support each other

@alliepete, I want to take this opportunity to extend my welcome to Mayo Connect. I have been taking cellcept and tacrolimus for my liver/kidney transplant for 12 years. I am unfamiliar with Everolimus except by name recognition, and I read that your husband is taking it. At 6 months post transplant, he can expect medication and/or dosage adjustments until his body responds well to one. He will need to be taking it for the rest of is life, so patience, as you say must be practiced.
What kind of progress is he having with reduction of ascites?

Hello Rosemary,
I am not qualified for a transplant at present. They are currently monitoring a tumor and watching my MELD score and tumor size. I did get answers. Thank you,
Susan

@parrot53, It has been a couple weeks since I have heard from you. I want to drop in and to ask - How are you getting along? Have you found the answers that you were looking for? Will you be eligible for transplant?

Thank you, Lori. It is a milestone.

Congratulations on your 5th transplant anniversary! That’s a very positive and encouraging mile stone. ☺️

@parrot53 as @rosemarya said, you need to ask those questions to the transplant facility that you are interested in. I do know that back when I had my transplant, 5 years ago today, there was not a specific age at my hospital, Mass General, they looked at the overall health of the individual and how they would do with such a major surgery. Of course they have you do virtually every test in the book too.
JK

@parrot53 - Hi Susan and Welcome to Mayo Clinic Connect. I am a liver and kidney recipient. As a patient I am qualified to share my experiences and to walk with you on your journey, however the information that you seek is best left to the Professionals.
Here is the link to the Mayo Clinic Liver Transplant Program
https://www.mayoclinic.org/departments-centers/liver-transplant/home/orc-20211818
and here is the contact information for the Florida Liver transplant Center:
Florida
4500 San Pablo Road
Jacksonville, FL 32224
Phone: 904-956-3309

Please call them and ask these specific questions directly to the liver department in Florida.
Has your current medical team suggested transplant?

Hello,
My name is Susan and I have been diagnosed with cirrhosis and HCC. My current question is what is the age limit for a liver transplant at Mayo Clinic in Florida? Current requirements to qualify for a transplant, how distance from the facility affects patients order for transplant, and current exception points/requirements for patients with HCC.

My husband's main drug is Everolimus for antirejection. Have ongoing ascites issue but seems to be slowing. We're still in the 6 month post surgery acute period so patience must be practiced. Quite a journey!

@alliepete I'm happy to hear that your husband's nausea is getting better with zofran. I never had that problem but I have heard a lot of people do lose their appetites. I do know that I was not on Cellcept for too long. Discontinuing that was the first drug change they made I think. Now I am just on sirolimus - tacrolimus was causing potential kidney problems. I will be five years post next week.
JK