Liver transplant - Let's support each other

Good afternoon Everyone. My name is Corey. I am one year post-transplant (03/10/23) . I was looking for a support group to learn from, ask questions, and share my experiences. I am a member of other non-transplant support groups and find them to be extremely beneficial. I am looking forward to reading all of the comments and connecting with others.

@rrichardparker I am a new member and looking to be a part of a community to share my experiences and learn from others. My transplant started on March 10, 2023 and concluded March 12, 2023 (there was a complication) so I still have moments when communicating with people who can relate to some of what I'm dealing with.

@lmctif I had similar symptoms that some others listed (high ammonia levels) but one interesting symptom was a high fever and body chills.

I am going on 7 years post transplant and have been on Envarsus / tacro and have the numbness and tingling as well. I have heard others say the same and mine hasn’t gotten much worse maybe at times worse than others. I have found exercise to help curb it so walking / biking / tend to help. Interested if you find any other options share as I think alot of us would like to know 😊🙏🏽

Rosemary hi girl! Jackie here. Question...October will b 4 years. I have been experiencing
Numbness and tingle in feet and legs. The numbness is always there the feet feel it especially at night. I have had emg test from neurologist and from current test to previous the condition has worsen. He thinks it is due to tacrolimus but if these symptoms r getting worse I guess my liver dr might want to change my mess. Wondering if anyone else is like me....thanks Rosey..love u guys all have a great day

Hello 🤗
Thank you for asking. I enjoy camping, photography and going for walks. My energy level is pretty good. I still have tough days but they are fewer and farther between. My biggest concern now is lack of sleep. I really struggle with uninterrupted sleep. I keep myself busy with work at my church and when the weather permits my garden.

@footballmum, I have to admit that I can't be still. My hand have always got to be doing something like a puzzle or knitting, or crocheting. I believe I got it from my mom because she was that way.
I hear what you are saying about your kidneys taking a hit. That is what i see from a lot of our members. I'm crossing my fingers about not needing diaysis and send my hopes that all remains stable. I know that you are dedicated to taking care of yourself, and this is to your benefit.
How is your energy? What are some things that you enjoy doing in your extra time?

Congratulations 🎉👏. Wow you are one active young lady. I'm so happy to hear that your liver and kidneys are doing so well. My new liver is doing amazing. My kidneys however are another story. They really took a wallop during my pre-transplant struggles and unfortunately have never recovered. So far no dialysis, so that's a win. Thank you for listening. 💚

@susanrmnp @footballmum
Thank you for your replies! As it turns out, I was not reading my appointment instructions carefully. Can you imagine that? after 15 years!
Anyway, the general instructions stated that 'some patients will need to follow dietary restrictions". When I made a phone call to inquire, I learned that MY specific instructions would be listed on my daily appointment plan. To my surprise, I was able to grab a light snack during my break before my ultrasound! This is yet another example of how we each have similarities and differences!
I am now home after my annual evaluation in Rochester. I am thrilled to know that my liver and kidney remain happy. As I begin another year of blessing with these beautiful organs, I am looking forward to healing from a wrist fracture and returning to my sewing, violin, and hiking with my hiking poles! Oh, and also looking forward to 2-handed keyboarding 😉

I am looking forward to hearing your updates. Anybody have anything - question or news - to share?

Good morning
I've had to stop eating after midnight on all my ultrasounds. Especially the Doppler ones. 😊