Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

maw90455 | @maw90455 | Feb 3, 2023

In reply to @myfablife "Are they looking to get u on the TP list! Do u have scarring from your..." + (show)

there has not yet been any discussion of the TP list at this point, and I hope they never bring that up-I hope you are staying healthy!

maw90455 | @maw90455 | Feb 3, 2023

In reply to @myfablife "Hi maw, With my TP center u have to have a meld score of 17 or..." + (show)

THANK YOU AND I HOPE YOU STAY SAFE AND HEALTHY!

maw90455 | @maw90455 | Feb 3, 2023

THANK YOU!

parrot53 | @parrot53 | Feb 3, 2023

In reply to @maw90455 "Extensive scarring-cirrhosis stage 4-meld score 14" + (show)

Hang in there. Your team will monitor you for any further problems. How are you feeling? Sometimes it is hard to wait and see but keep your friends and family close and enjoy each day. I know being in this situation is difficult but it made me reevaluate my priorities and I am so thankful for that. Wishing you the best of luck on your journey.

crystalfaye | @crystalfaye | Feb 3, 2023

Liver transplant in June of 2022.
It has not been a smooth journey but I am confident it will all work out.

My question is to those who have had a transplant, do you have occasional issues with running a low grade fever a extreme tiredness? It takes me a couple of days to recover from these episodes.

myfablife | @myfablife | Feb 2, 2023

Hi maw, With my TP center u have to have a meld score of 17 or higher w/other symptoms to be considered for TP. Every TP center has certain criteria. I-had a high meld score, ascites, portal hypertension and hepatic encephalopathy “which was horrible” hospitalized for a while from that. I too was dx. with NASH with cirrhosis. That is why they monitor your labs so closely for any changes. I was put on several meds to help with my symptoms that I had.
I hope u stay well and let us know how u do. It’s a lot to deal with.

maw90455 | @maw90455 | Feb 2, 2023

In reply to @myfablife "Are they looking to get u on the TP list! Do u have scarring from your..." + (show)

Extensive scarring-cirrhosis stage 4-meld score 14

myfablife | @myfablife | Feb 2, 2023

In reply to @maw90455 "I have not had a transplant" + (show)

Are they looking to get u on the TP list!
Do u have scarring from your cirrhosis and have they given u a meld score.

myfablife | @myfablife | Feb 2, 2023

Hi,
From what my TP team told me to get on the TP list u have to meet the criteria of how serious your liver disease is . That’s why they monitor your labs and keep track of your meld scores so closely. If they start seeing changes they will change your labs to every 30 days and so on. R u having any symptoms of liver disease besides the tiredness. I had my LTP 2020.
Good health to u to..💚