Liver transplant - Let's support each other

@rosemarya: Do you have any info about Psoriactic Cirrohsis, non-alcohol related? Someone close has been diagnosed & given a pretty dire prognosis. Family Would like him to get a second opinion and/go to Mayo? What are treatments, long term consequences, successful outcomes, etc

I am constantly amazed at the level of support and compassion that all of our members are share so generously. And with that in mind, I want to drop in on some recently acitve members who came here for support for updates.

@nanaking, I am thinking about you and your brother on this rainy Kentucky morning. Were you able to schedule an appointment at UC? Will he need to be re-evaluated for the Ohio transplant list?

@frankw54, How are you getting along as you begin your 2nd year with your new liver? The last time we talked, you were wondering what to do with your time. What kind of ideas have you come up with? (I know that @contentandwell would welcome your experience in the HE discussions)

@godlygal, I hope that you have found a sense of peace and direction with your caregiver role for your friend. How are you getting along? What kind of support are you getting? How can I help you?

@shelly63, I was not familiar with Budd-chiari, so I googled it. https://rarediseases.org/rare-diseases/budd-chiari-syndrome/
I also had a rare liver disease (PSC). I am thinking about you. How did your appointment go?

Members old and new - Add your updates, too.

@banzai what type of liver failure do you have? Mine was from cirrhosis.
You mention alternative medications. What are they, and has your gastroenterologist or hepatologist prescribed them?
I can understand being leery of regular medications, but many alternative medications have negatives also. There is now much they can do to help with liver problems.
I will be curious to hear how the alternative medications are working for you, I hope they will be effective.
JK

Yes he gives pills
I’m going use alt meds

That’s too bad. Are you seeing a gastroenterologist?

I was treated for diabetes but didn’t have it
It was liver failure

Hi, banzai. I want to extend a welcome to Mayo Connect. I don't know to whom you are directing your post about a veteran's section, Did you mean to inquire about one in your area?
I am glad that you found Connect because Mayo Clinic Connect is an online community so it is available to you anywhere, anytime.
Welcome and thank you for your service to our country.

How are you feeling? Is your diabtes controlled? How can we help you?

I suggest you have military retirees n veterans section
We have vet care which is not worthy in my opinion but some give vets choice to go civil care
Retirees have tricare n tricare for life
But I’ve waited 6 years for care
The va treatetme for diabetes when it was liver failure
Now it may be too late

@nanaking @rosemarya Rosemary is a big step ahead of me on this, but I too will do whatever I can to help you and to lend support. I too have been through a liver transplant due to NASH cirrhosis so I know how overwhelming everything can be.
JK

Kim, He is very fortunate to have a sister like you to take on a caregiving role and get the connections and details arranged for him. I imagine that right now he is overwhelmed with worry and not feeling good, either.
Was the contact information helpful for you?

Please tell me what I can do to lend support for you or for him. I try to check my messages regularly and be available.