Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

Rosemary, Volunteer Mentor | @rosemarya | Feb 22, 2020

In reply to @racing212 "Im in Minnesota and go to mayo march 16th and 17th" + (show)

@racing212,
Are you going for a routine checkup, or will you be going for transplant evaluation?

racing212 | @racing212 | Feb 22, 2020

In reply to @beckyy39 "I'm in florida and am supposed to go to my eval visit March 10" + (show)

Im in Minnesota and go to mayo march 16th and 17th

beckyy39 | @beckyy39 | Feb 22, 2020

In reply to @mathewsw "@rosemarya I recently was informed by my Liver Transplant Team that they no longer do Living..." + (show)

@mathewsw I also found out that although I have 2 children willing to donate, Jacksonville no longer does this. I was thrown for a loop since I assume this will make the process much longer if they had been a match.

beckyy39 | @beckyy39 | Feb 22, 2020

The process and what to expect with support resources, caregiver, financial, medication, transportation, etc.

beckyy39 | @beckyy39 | Feb 22, 2020

In reply to @jeanne5009 "I'm in FL and would love to be part of the group. Anyhing about HE interests..." + (show)

I'm in florida and am supposed to go to my eval visit March 10

racing212 | @racing212 | Feb 22, 2020

In reply to @jeanne5009 "I'm in FL and would love to be part of the group. Anyhing about HE interests..." + (show)

I go to mayo mn,and evey 3 months my meld is 19. And get HE often. I get it so bad i spend days in the hospital and even been transford to bigger hospital's

jeanne5009 | @jeanne5009 | Feb 22, 2020

I'm in FL and would love to be part of the group. Anyhing about HE interests me. I am ESLD and have moderate HE. Meld is 8 and Mayo sees me every 6 months unless needed.

joanaiken | @joanaiken | Feb 16, 2020

Thank you so very much, Rosemary! I am ok with the procedure. Mayo has liver biopsies down to a tolerable experience. I have had several through the years. It's more the 40 mg of Prednisone that has been rather distracting. LOL Hugs back.

Rosemary, Volunteer Mentor | @rosemarya | Feb 16, 2020

In reply to @joanaiken "Yep. I have had annual evaluations for 10 years. The last few have not included biopsy..." + (show)

@joanaiken, I'll be thinking of you tomorrow and hoping that the results of the biopsy are satisfactory. It will be probably be a long and stressful day for you.
Hugs,