Liver transplant - Let's support each other

@racing212, Thanks for the quick reply, I didn't know if I should tag you in the information about evaluation. Hopefully soon, though.
So, maybe you will get some decent travel weather 🤞
Will you be there as an outpatient? Do you stay at the Gift of Life House?

@beckyy39,
For your evaluation appointment, one of the first things that I would advise you is to get a good sturdy notebook and a sturdy folder for storing all of the paperwork and information that you are going to collect before, during and after the evaluation. Also get a sturdy water bottle to carry with you. And comfortable shoes because you will be doing lots of walking.

With appointments at Mayo you will receive a schedule packet which will also tell you all about each procedure on your schedule. You will look at the appointment schedule and wonder how all of that can be possible in a span of a couple days. Trust me, it will!
I know that our members are going to have ideas of their own to help you along the way.

In the meantime here are some links I think you might want to look at.

-TransplantsTransplant Evaluation - What to expect
https://connect.mayoclinic.org/discussion/transplant-evaluation-what-to-expect/
- Getting Listed for Transplant
https://connect.mayoclinic.org/page/transplant/newsfeed-post/getting-listed-for-transplant/https://connect.mayoclinic.org/page/transplant/
- Transplant Pages - https://connect.mayoclinic.org/page/transplant/ -is a part of Connect that is put together by the transplant staff. I consider it a "must read" and keep it in my favorites folder. If you scroll thru the newsfeed posts, you are going to find articles that will provide good reading about topics like -Getting Listed for Transplant
https://connect.mayoclinic.org/page/transplant/newsfeed-post/getting-listed-for-transplant/https://connect.mayoclinic.org/page/transplant/
Becky, What is your biggest concern or question about your upcoming appointment? You can ask anything us anything because we want to support you and all transplant patients.

Rutine check up. Last one was in September. Im leaving on the 15th

@racing212,
Are you going for a routine checkup, or will you be going for transplant evaluation?

Im in Minnesota and go to mayo march 16th and 17th

@mathewsw I also found out that although I have 2 children willing to donate, Jacksonville no longer does this. I was thrown for a loop since I assume this will make the process much longer if they had been a match.

The process and what to expect with support resources, caregiver, financial, medication, transportation, etc.

I'm in florida and am supposed to go to my eval visit March 10

I go to mayo mn,and evey 3 months my meld is 19. And get HE often. I get it so bad i spend days in the hospital and even been transford to bigger hospital's

I'm in FL and would love to be part of the group. Anyhing about HE interests me. I am ESLD and have moderate HE. Meld is 8 and Mayo sees me every 6 months unless needed.