1. < Transplants
Profile picture for azkellyw

Liver disease and emotions

Posted by azkellyw @azkellyw, 1 day ago

I've been trying to find the best way to write my question. I don't normally seek answers for emotional issues but things are progressing in that area.

I was wondering if anyone else pre-transplant that have had this condition for a long period of time have experienced a lack of emotions and no desire for physical connections with their spouse. My physical I'm only asking about simple acts like holding hands, hugs, kisses or just an arm around the shoulder.

I feel myself pulling away from all of these as I feel mentally drained from just getting through the rest of life each day and I have no room for anything else.

I was told by the Mayo psychiatrist that the encephalopathy can cause this even with medication. I've just not experienced it until the last five or six months. It doesn't bother my husband as he understands the stress all of this has had on me.

I've been on and off the TRX list for 13 years now and I'm just tired of the whole thing.

Can anyone relate?

Thx
KW

Interested in more discussions like this? Go to the Transplants Support Group.

Profile picture for pgruetz
pgruetz | @pgruetz | 21 hours ago

You should be grateful you have someone right next to you my closest friend was a 1000 miles away I m a Christian which really helps like no end, didn’t have to wait for years 7 months from diagnosis to transplant 2 1/2 years ago I wish my partner was there 24/7 but she was there when she could the worst part is the recovery so get prepared for that I still am but I love being alive and my life, you really need to rethink what you’re doing it’s not healthy for you

REPLY
1 reply
Profile picture for azkellyw
azkellyw | @azkellyw | 20 hours ago
In reply to @pgruetz "You should be grateful you have someone right next to you my closest friend was a..." + (show)
Profile picture for pgruetz @pgruetz

You should be grateful you have someone right next to you my closest friend was a 1000 miles away I m a Christian which really helps like no end, didn’t have to wait for years 7 months from diagnosis to transplant 2 1/2 years ago I wish my partner was there 24/7 but she was there when she could the worst part is the recovery so get prepared for that I still am but I love being alive and my life, you really need to rethink what you’re doing it’s not healthy for you

Jump to this post

Can you elaborate on what I need to rethink? After 13 years I don't believe there is anything that hasn't been revisited 100's of times. Some fresh input would be nice.

REPLY
1 reply
Profile picture for benedict66066
benedict66066 | @benedict66066 | 19 hours ago

I completely understand how you are feeling. It sounds to me like you might be depressed, and with reason! I have had feelings of disconnection myself as I await transplant. I would say to just keep doing things together that give you real connection. Bless you.

REPLY
Profile picture for pgruetz
pgruetz | @pgruetz | 18 hours ago
In reply to @azkellyw "Can you elaborate on what I need to rethink? After 13 years I don't believe there..." + (show)
Profile picture for azkellyw @azkellyw

Can you elaborate on what I need to rethink? After 13 years I don't believe there is anything that hasn't been revisited 100's of times. Some fresh input would be nice.

Jump to this post

Don’t think about when I found out I was told I had 5 days to live so I had zero time to dwell on it, I recommend not thinking about 24/7 after the transplant it’s worse just so you know

REPLY
Please sign in or register to post a reply.