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natalieo
@natalieo

Posts: 2
Joined: May 26, 2016

Liver Cyst - Recurring Any link to Lyme Disease

Posted by @natalieo, May 26, 2016

Five years ago I had a large liver cyst removed without complications. The cyst grew back and 2 years later I had it removed again. Last year I had my third liver cyst removed. This time they removed my gallbladder and part of the liver. I just found out that it has again grown back. I’ve been told that no one knows why liver cysts develop, but I can’t continue to have surgery every year or two. There must be a reason that it is growing back. I’m also wondering if it can at all be connected to lyme disease. I was treated for lyme disease for about a year, and thought to have had lyme disease for about 2 years before being diagnosed. Anyone with similar occurrences?

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REPLY

Welcome @natalieo.
This is a good question to ask your doctor. I assume your care team knows that you had and were treated for lyme disease. According to this Mayo Clinic article http://www.mayoclinic.org/diseases-conditions/liver-problems/expert-answers/liver-cysts/faq-20058440

“The cause of simple liver cysts isn’t known, but they may be the result of a malformation present at birth. Rarely, liver cysts may indicate a serious, underlying condition such as polycystic liver disease, an inherited disorder; echinococcus infection, a parasitic infection; or liver cancer.”

I’m tagging @mieke @paty1979 who have talked about Lyme disease on Connect. Have you experienced liver cysts? I’m also tagging @hopeful33250. @bonitav @irvkay312 who talk about pancreatic cysts here https://connect.mayoclinic.org/discussion/pancreatic-cyst/ They may have something to add to this conversation too.

Natalie, does your doctor recommend surgery to remove the newly formed cyst?

@colleenyoung

Welcome @natalieo.
This is a good question to ask your doctor. I assume your care team knows that you had and were treated for lyme disease. According to this Mayo Clinic article http://www.mayoclinic.org/diseases-conditions/liver-problems/expert-answers/liver-cysts/faq-20058440

“The cause of simple liver cysts isn’t known, but they may be the result of a malformation present at birth. Rarely, liver cysts may indicate a serious, underlying condition such as polycystic liver disease, an inherited disorder; echinococcus infection, a parasitic infection; or liver cancer.”

I’m tagging @mieke @paty1979 who have talked about Lyme disease on Connect. Have you experienced liver cysts? I’m also tagging @hopeful33250. @bonitav @irvkay312 who talk about pancreatic cysts here https://connect.mayoclinic.org/discussion/pancreatic-cyst/ They may have something to add to this conversation too.

Natalie, does your doctor recommend surgery to remove the newly formed cyst?

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Relative to cysts, Octreotide Scans have shown mine to be normal or
Tuberous Sclerosis caused (TS is a benign form of cancer as it
presently stands. Since mine were located on the kidney and other
area’s 5-6 years ago—it was suggested to leave them alone unless
any major problem developed from their existance.

Sincerely,

Kay

@colleenyoung

Welcome @natalieo.
This is a good question to ask your doctor. I assume your care team knows that you had and were treated for lyme disease. According to this Mayo Clinic article http://www.mayoclinic.org/diseases-conditions/liver-problems/expert-answers/liver-cysts/faq-20058440

“The cause of simple liver cysts isn’t known, but they may be the result of a malformation present at birth. Rarely, liver cysts may indicate a serious, underlying condition such as polycystic liver disease, an inherited disorder; echinococcus infection, a parasitic infection; or liver cancer.”

I’m tagging @mieke @paty1979 who have talked about Lyme disease on Connect. Have you experienced liver cysts? I’m also tagging @hopeful33250. @bonitav @irvkay312 who talk about pancreatic cysts here https://connect.mayoclinic.org/discussion/pancreatic-cyst/ They may have something to add to this conversation too.

Natalie, does your doctor recommend surgery to remove the newly formed cyst?

Jump to this post

Right now the cyst is 3cm by 4cm (with a couple small 1cm cysts present). No surgery right now. The last 3 cysts were over 10cm and causing pain. We will wait to see if they grow before deciding on surgery again.

https://books.google.com/books?id=WeDotf5jG84C&pg=PA643 Sherlock’s Diseases of the Liver and Biliary System (page 643), 2011
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4124364/ Destructive granuloma derived from a liver cyst: A case report, World J Gastroenterol, 2011
http://jtm.oxfordjournals.org/content/19/1/28.full Cystic Echinococcus of the Liver: Experience from a Danish Tertiary Reference Center (2002–2010), Journal of Travel Medicine, 2011

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