Liver biopsy

Posted by adah @adah, Feb 9, 2019

My son has had a FibroSure test, which came back abnormal, needs a liver biopsy now. What will biopsy tell? And is this test accurate?

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@musicflowers4u

Which doctor will you see?

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Dr. Patarucha

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@racing212

Rose.
I go to Rochester. Mayo in September for ct scan ekg stress test and ultrasound. Plus see Dr. And labs

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@racing212, You are in good hands at Mayo Rochester! I can see that they have a full schedule already prepared for you. I have always been amazed at how efficient they are, and how quickly the results are available.

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@rosemarya

@racing212, You are in good hands at Mayo Rochester! I can see that they have a full schedule already prepared for you. I have always been amazed at how efficient they are, and how quickly the results are available.

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Thank you. It wears you out being there all day

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@racing212

Thank you. It wears you out being there all day

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Yes, it wears me out too, when I have my annual check ups there. The Rochester campus is beautiful, and I imagine the Jacksonville and Phoenix campuses are beautiful as well. <My husband and I travel by car and make it a 2 day trip from Kentucky. We always enjoy relaxing and people watching in the Ghonda Lobby between appointments. I'll bet it is pretty up there in September.

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It is very nice here at the end of September

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@adah

Just wondering if you were ever told you had sinus inflammation on catscan or mri? Before you were told you had Hepatic encephalopathy.

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@adah I just came across this post and was not sure if the question was directed to me or someone else.

I don’t believe that sinus inflammation was considered, and the only CT I had was the one that confirmed cirrhosis. Due to also having low platelet counts I did have a bone marrow biopsy and some other test, I don’t recall what, but the two symptoms were not at that time considered to be associated with each other. My HE, not identified as being HE, was thought to be a neurological problem. Wrong of course.
JK

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Im 50 yrs old and had a liver biopsy. It them i had liver disease and need transplant

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@racing212

Im 50 yrs old and had a liver biopsy. It them i had liver disease and need transplant

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@racing212 Do you have cirrhosis? I had non-alcoholic cirrhosis and had a liver transplant in September 2016. If there is anything you want to ask, please feel free. I will try to answer to the best of my ability based on my own experiences.

What symptoms led them to do a liver biopsy?
JK

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@contentandwell

@racing212 Do you have cirrhosis? I had non-alcoholic cirrhosis and had a liver transplant in September 2016. If there is anything you want to ask, please feel free. I will try to answer to the best of my ability based on my own experiences.

What symptoms led them to do a liver biopsy?
JK

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I do
Have non alcoholic cirrhosis, fluid build up

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@racing212

I do
Have non alcoholic cirrhosis, fluid build up

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@racing212 I had symptoms for a number of years that were never attributed to cirrhosis — declining platelet counts, shaky hands, retaining fluid in my feet, but then I had an HE (hepatic encephalopathy) episode and that made the doctor know there was something going on, but the other symptoms were still not connected to the problem. The HE made the doctor I went to at that time think my problem was neurological. and she sent me to a neurologist. Before that she actually called me on the phone and told me she thought I had Alzheimer's! The neurologist was the one who suggested it might be a liver problem, at which point a test for ammonia was done. By then I had changed PCPs. My ammonia was high so I was sent for a CT and that confirmed cirrhosis. It took about a year and a half after my first HE episode for the doctor to finally figure it out despite the other symptoms being typical signs of cirrhosis too. I was then told to see a hepatologist and went to one at Mass General. She told me that I probably had cirrhosis for 10 years! Apparently it takes a while to really present itself.

What I learned from that was if a diagnosis is not identified in a relatively reasonable amount of time, to head to Boston. I live in southern NH.
I hope you are seeing a good hepatologist and the doctor will guide you well in the best ways to prevent the cirrhosis from advancing further. Some people are able to go for a very long time following dietary restrictions and never need a transplant.
Again, please feel free to ask any questions you would like answered. Those of us who have been there are glad to share with people now going through it.
JK

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In reply to @debralbh "R" + (show)
@debralbh

@debralbh, Hi, and Welcome. Did you intend to send a response?
I will get it if you send a reply by following these steps; 1-click "reply", 2- type message, 3- send.
I will be happy to help you? What would you like to ask?

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