Livedoid Vasculopathy or Livedo Reticularis (whole body face white)
I have mottled skin that started out with a R.enlarged axilla lymph node and after biopsy worsened to full body (my biopsy was a failure as “lymph nodes fell apart during dissection”) then my R. shoulder became more painful and it was overlooked until I moved to FL and saw a Orthopedic who diagnosed “detached shoulder” on 1st visit, this was not due to trauma or fall?? I had a Bankart Repair.SLAP 2, SA , extensive debredment an d was suppose to be discharged that day but was kept overnight for observation due to “Catacholamine attack” I heard the staff speaking of this while being wheeled to my room. I was discharged the next day and strangly never saw the doctor prior to surgery or prior to discharge? When I was admitted that day the nurses put about 10 heated blankets on me as my skin was so darkly mottled.
My pain is the R. upper extremity to axilla deep achy pain and shoulder to hand that now it affects my writing also rib area. My health has deterioted a great deal since finding the axilla lump and trying to find a compassionate doctor to listen to me has been difficult.
2 years after my failed shoulder surgery I had a CT or MRI of shoulder and it was found that I have severe Chrondomalacia (cartilidge loss) which the surgeon said it will only worsen but he refuses to do surgery as did another Orthopedic at UF Shands, I was also told the bicep is “raggedity” and the 4 pins inflammed.
I also was diagnosed with MGUS due to a abnormal IgA and Beta2glycoprotein which showed my blood too thick but the doctor said “take baby asa” I then was sent to Moffits for pain by my pain management but was told “we only treat cancer pain”
I have lost faith in the medical professionals as I just saw of my diagnosis that I never was told I had ( Heart disease. Pain all over?? etcc.) Misdiagnosis or doctors using the Psych card and that all our complaints are all in our head.
I just want relief of my suffering the R. upper extremity pain, palpatations, excessive sweating but skin cool, skin changes on face flakey peeling skin , enlarged pores on nose, unexplained bruising big black ones not sore to touch, my white face that my family says I look like walking dead, no appeteite, and dark tea colored urine that is strong odor with white floaters .and lastly a scalp lesion (solidary) that has not healed in about 4 years causing ulcerating and not able to have hair professionly cut styled.
Why I seem to get to get doctors who only do blood test or send me here and there only to be discouraged and my hopes deflated. I am 59 and female and have a upcoming Mayo appointment with Hematology/Oncology and this is and will be my last if they find nothing or do nothing more than what has already been done.
Anyone had any similair…. was your Livedo diagnosed by just looking at it like mine??