My Journey with PMR: Listening to my body.
When I started this journey in May I kept getting told listen to your body and now I understand. Interrupted sleep last night due to loud fireworks so feeling tired this morning. The old me would have shrugged off this feeling and gone for a jog and gym later. But I will never ever forget that pain of not being able to move any part of my body or sit on the toilet. As for getting dressed, well that was a joke wasn’t it. So hubby taken dog out and I am having an easy day. Never thought I would turn into a wise owl. Tomorrow is another day.
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Once Pred had the PMR under control and I was able to exercise again I still had pain and weakness in my left shoulder. I did come to realise that it felt better after swimming and I was able to do shoulder exercises with 3k weights so thought I was winning. After my extreme challenge the other week I had forgotten about my shoulder as it no longer gave me any problems. Not been swimming for a few days and pain was back and I realised it was nothing to do with PMR just good old arthritis. It is the shoulder that I had a rotator cuff injury years ago so bond to happen. Swimming 4 times a week now, just 6 lengths fast crawl and done, I do smile that it takes longer to shower afterwards then the swim itself. But just those few hard lengths keep the shoulder moving. At the back of my mind a little voice says the Pred was masking the problem and now I am on 6mg I have to get on and sort it myself.
It is easy to fault PMR for everything and wonder if it is a bad thing that prednisone “masks”? Doesn’t it actually help keeping inflammation down?
My PMR kicked in just about a year ago. Because it was relatively mild, I managed the pain with Aleve for months. I started 5 mg prednisone two months ago and I’m currently taping. I found that my left shoulder was more painful than the right and subsequently less mobile. I’ve been doing some PT for that shoulder for a couple of months and it’s helped tremendously. I still have morning discomfort, but I am able to swim laps and use my left shoulder more confidently with the PT. My rheumatologist thought that with the pain I was guarding and having rotator cuff problems. I’m nearly done with the PT but I have a set of exercises for maintenance going forward. I’ll keep swimming those laps as well, since it provides such good range of motion for my shoulders.
I like this post. I am on dexamethasone 1 1/2 mg daily and reducing to .75 in a month. Will try Prednisone again later on. Needed relief to cont movement. PMR for 4 years. Doing chiropractic and swim exercises 3 times a week. Any and all suggestions welcome
One more day of 5mg to go. Definitely felt much better yesterday and today even better. Spring cleaned the front room at 6 am then weight training at the gym and managed to lift a few heavier weights which is why I now have that delicious muscle pain after some hard work. Someone even remarked that I looked happier and not struggling anymore, which I thought was really nice. Going to use 4.5mg for 2 or 3 days before dropping to 4 and at least I know what to expect. Sun is shinning so off for a short run with my Dob.
Good on you. It makes all the difference when things look up and something happens to make us feel good, doesn't it. I'm currently feeling pretty good too, and have reached 6mg for the first time with no problem. My energy level is also good, not fatigued and weary like some of the reductions last year. Let's fully appreciate the things that are going right.
Yeah, good for you. I hope the good feeling lasts or even gets better as you continue to taper. I'm about 4 months behind you on the taper, and I look forward to getting down to 5.
I felt pretty flat when I woke up today. I overdid the walking a little yesterday, and also I did an Actemra injection. Sometimes Actemra makes me feel tired the next day. I still went out and walked 3 and a half miles, and while I was out I did 6 jogs of about 30 seconds each. While I was doing those jogs I felt better running than I had in probably more than a year. I think that while I've had PMR and GCA, I've been braced for impact whenever I ran, trying to protect myself (I run mainly on asphalt). Today it was like my body all of a sudden knew how to run again, so running felt great.
Started the 4.5 on Monday and all was well of course but different story yesterday. At the gym in the morning I kept giving up on each bit of equipment and then trying again and failing so went home. Gave myself a good talking to and decided doing my favourite thing in the world would help. So dog in car and drove to our nearest countryside walk. Still got a bit of wild weather here in the UK but that just made it more fun. I even started thinking that on Thursday I could put trail running shoes on and really have some fun. The grassy muddy path we were walking on is in between two quite deep water ways. A Deer appears over one side and that is the first one my young Dob has seen and she was off. Like most Dobermann she will walk round a puddle rather then getting her paws wet so I knew she would not go in the water. After 5 minutes she gave up and I realised I had not got stressed. In the afternoon the pain started in my right hand. Then seemed like all my right side so I went to bed and the warmth helped a lot. Pain stopped after a couple of hours. Feeling much better this morning. I am aware that for adrenal health the Vit B’s are so important so getting some Vit B complex. They will of course take a few weeks to kick in but will be interesting to see if they help. I can then stop having Marmite on toast as that was starting to annoy me. Sun will be shinning this morning so off for a lovely dog walk on the beach.
Sounds like you're definitely making the best of the situation and listening to your body as well - all good!
Good luck to you!
Loved your post, and your great attitude. I started 5 yesterday, and so far so good. Of course that doesn’t mean much, as it usually takes a few days for my body to rebel. But I have learned to stick it out with Tylenol and Voltaren, and it usually passes. I will do almost anything to get off the dreaded pred. The side effects keep coming. I recently developed cataracts out of nowhere, and my swollen feet/ankles are worse than ever. Discouraging.