1. < Prostate Cancer

list of 10+ years metastatic prostate survivor on lupron

Posted by johnk1944 @johnk1944, Dec 24, 2023

As encouragement to worried newbies. Please include when procedure was done when metastatic was found and what you have done which may have helped you survive

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

florida11 | @florida11 | Dec 28, 2023

While maybe not the same drug as you, I believe Michael Milken has been on hormone therapy since 1993 and still going. He credits this in large part to his vegan diet and calorie restriction of 1400 a day.

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ronc320403 | @ronc320403 | Dec 28, 2023
In reply to @billfarm "Question if I may ask how did you avoid radiation therapy ? I am also stage4..." + (show)
@billfarm

Question if I may ask how did you avoid radiation therapy ? I am also stage4 after surgery . Zytiga/orgovyx adt. Undectable psa and nothing on recent scan. A lot of pressure from drs for radiation. I don t agree I don t understand how that treats metasized cells that drugs currently seem to be managing .

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I can only speak from my experience but I've had 23 low dose treatments and then 6 years later 4 very high dose targeted radiation treatments and have had no side effects. Our differences are my radiation was before chemo but after seed implants. Just FYI to consider. God speed.

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robert570 | @robert570 | Dec 28, 2023

2013 52 years old Gleason score of 9, metastatic castrate resistance aggressive prostate cancer that spread to my bones and pelvic area lympnodes that were all removed. To many treatments to list, but they have thrown everything buy the kitchen sink at me. Key to survival, MIND OVER MATTER. I did not change my diet and until this day I take trips and continue to do small projects around the house. I'm not the same physically but I joke about everything about that and death. Sense of humor may be the key but I think that there's a desire to achieve more goals than worrying about death. Oh, and percocet helps, LOL. Just keep upbeat. Crying helps because I believe it helps with the pressure. NEVER ACCEPT A DOCTOR TELLING YOU THAT YOU HAVE THIS LONG TO LIVE. Listen to your favorite music, which is hard rock for me. That's where I'm at and I believe I will NOT die from prostate cancer, I will die with it.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 30, 2023
In reply to @cooper1076 "Is it even metastatic if it hasn’t yet moved into the organs or lymph nodes? I..." + (show)
@cooper1076

Is it even metastatic if it hasn’t yet moved into the organs or lymph nodes? I have a l PSA after Prostate removal and am starting Lipton and radiation. So far nothing shown on pet scan or MRI.

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@cooper1076, metastatic prostate cancer means the cancer has spread from the prostate to other parts of the body. It is sometimes called advanced prostate cancer.

You might appreciate this info from Mayo Clinic:
- Prostate cancer metastasis: Where does prostate cancer spread? https://www.mayoclinic.org/diseases-conditions/prostate-cancer/expert-answers/prostate-cancer-metastasis/faq-20058270

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