Mayo Clinic Connect
Has anyone had the Linz procedure and what was your experience?
I had the LINX procedure in September 2018 and have had no real problems, just expected recovery issues. I do not have a problem with gas. I am able to burp or vomit without a problem, if need be. I did have a chest ache/backache occur a few times but have not had it now for several weeks. I was told it was probably a spasm. Sometime white bread will become lodged. This is now rare and only requires that I give it a minute and it passes. Overall I have been very pleased. Have not needed antacids since the surgery.
I also had a hernia repair.
So far, I don't have any doctors that are willing to do a Linx after Nissen.
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Are you speaking with a LINX surgeon?
I just had surgery on Jan 22nd 2019 to re-repair a large hiatal hernia and my surgeon who does the LINX procedure undid a Nissan wrap from 24yrs ago that had slipped. She then applied the LINX band. I've been heartburn free for the 1st time on 30yrs. It's awesome.
My surgeon Dr Helen Sohn who works out of Grossmont Hospital in La Mesa CA. which is San Diego east county. She is also part of a nation wide net work of Drs specializing in the LINX procedure.
I'm told I'm not a candidate for Linx after my Nissen. Not because it can't be done but because of the strength of my esophagus muscles. My esophagus doesn't have the strength to open the Lynx when I swallow. I go see my surgeon on 2/28 to see what options I have.
i had linx dec 10 2018…..i had a chronic cough from the acid….i still cough some but am told that will decrease….i do have alot of gas but am told that should subside…..i am 9 weeks post op…..anyone else dealing with alot of gas
Happy to hear that people who have had Nissan done may be able to have the LINX. I’m so happy I had it done.
So you had a motility study done? This is where they pass a special catheter through the nose into the esophagus. The RN then has the patient take sips of saline and swallow. Mine showed my esophagus was actually spasming trying to push whatever is swallowed thru the herniation.
As you sent me a private message about meeting others who have had the Linx procedure, I thought I would post your question here in this discussion group where many have discussed Linx. I would like you to meet @sylvias and @drrobertsmsmft. I hope they (and others) will share with you.
Here is some information from Mayo Clinic's website, https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-provides-new-treatment-for-acid-reflux-disease/
@marlaxyz, are you considering this procedure for yourself? What other meds or procedures have you tried?
My 6 year old has a failed nissen fundoplication. She suffers from severe GERD that has caused damage to her lower esophagus and stomach. Her GI said no one will redo her nissen due to high failure rates. Her GI is wanting to put her on PPI's for 3-6 months then take her off and go back to zantac until symptoms return. This sounds like a horrible answer. Would she be a candidate for the LINX system? Or are there other options we aren't pursuing?
Thanks in advance
I'm 82 with a failed Nissen.(causing gastropaneisis).. ironically I have a 19 yr old who has gastropaneisis but has not had a Nissen.. she is at Univ of Iowa..where she is handy to her doctors…I go to Mayo MN.. GI Dept have you been there…? Good luck.. I am so sorry for the tough row ahead…
If she already has damage to the esophagus she needs the ppi's to heal it. I would get a second opinion from Mayo if you can. She needs to be on a low acid diet too. No spicy, fried, Italian,Mexican foods. No soda ever. No fruit juices of any kind. Stop eating 3hrs before bedtime. Stay away from highly processed foods which have a lot of acid in them.
Almond milk is alkaline so it's good to drink. Melon is good to eat. Baked chicken and turkey are good too. No seasoning except pink Himalayan salt which is not refined like table salt. Broccoli, aspergus, green beans, Lima beans, peas, Brussel sprouts. Sorry to hear she has this at such a young age.
So sorry to hear this about a 6 year old!! I had a nissen in 2013… it was too tight and broke down. Then had a toupet fundoplication in 2015… which is a partial wrap. That didnt work either. Still suffering! Can't eat. Can't throw up. Full of adhesions. Positional pains. Can't gain weight back. Was 140 at surgery, now 105. (195 when I first started getting ill in 2009.) I REGRET both surgeries!! Please get all info you possibly can before having ANY other procedure. My next option is Mayo, but the damage is already done and I don't see life improving much… I am 58.
I am now 82, Had a failed Nissen 5 yrs ago… went to Mayo 2 months after the Operation because the locals could not figure out what was wrong… I lost 50 pounds by then… Mayo GI department doctor figured out what was wrong in a few hours..(Gastroparesis) and 3 tests… saw the nutritionist there … The mayo doc prescribed 2 drugs… a Nexium generic.. and a mild anti-depressant (Mirtazapine) sp… that is supposed to make me want to eat… Eating is still a challenge.. everytime .. one has to be soooo slow.. so careful… cut up in tiny bites, chew very well, get used to your whole system working differently… Trail mix is my snack friend … I eat it a lot…Ice cream… a little butter… but now I am 173 pounds..male, 5'10"….. so gained back about 25 pounds… If food gets "caught" it comes up with a foam easily… but that happens less and less frequently as time goes on … One has to drink a lot of water.. as the water generated by the gastroparesis needs to be accounted for…I sneeze some when eating certain things…I drive my car when meeting folks.. so I can leave when I need to… because of GI issues…. when I eat I must be cognizant of when I am full… Do not over fill… take boxes home … of even appetizer servings.. when eating out… leave room for dessert.. Grazing is my favorite way of eating now… work a crossword puzzle.. look at articles on your phone… distract yourself from "shoveling it in"…. we are slim and trim… Lately I came down with Prostate Cancer (a garden variety) that was controlled with Radiation Oncology… verified by Mayo… but that radiation irritated urinary and bowels… that is subsiding now … and should be normal in a month… so health challenges are always coming up… and we face them, get the best help, and keep positive… good luck… Ken
Hello @drrobertsmsmft and welcome to Mayo Connect! I’m glad that you found this online patient support group. Is the procedure you are asking about for GERD or reflux problems? If so, I believe it is the LINX procedure. Here is Youtube video from Mayo Clinic regarding it, https://www.youtube.com/watch?v=1rFDc_qFTsQ. We have had other Members of our community discuss reflux and the different treatments please see the discussions at https://connect.mayoclinic.org/discussion/laryngopharyngeal-reflux-lrp-severity-and-outlook/?pg=2#comment-52068.
We look forward to getting to know you. What type of symptoms have you had and for how long? What other treatments have you tried?
I had Fundoplication surgery 10yrs ago.but ive started hvin acid reflux again.with a chronic cough, lump in throat, asthma, hoarse voice, sore throat, I’ve never had asthma and the medicine for asthma makes the GERD worse.. I can’t sleep for the burning in my chest and coughing. Then it goes down in lungs and it gets very hard to breathe out. I’ve been to doctors,ERS,pulmonologist,ENT,breathing function test..BUT THEY LOOK AT ME LIKE THERES NOTHING WRONG.. I’ve been this way fir the last 4months. With very little air.very had to breathe.. So can I have the Fundoplication redone? Or the Linx done with the Fundoplication?
Plz if u can help me 🙏
For all of you suffering from Gerd I sympathize
I easily keep my occasional acid reflux with aloa vera gel that I keep in the fridge. I teaspoon when needed..natural..no side effects never heard/read anything bad about that product!
I had Fundoplication surgery..can I hv Linx surgery now? The acid coming up is so bad.
I’m not sure what I need to do but I can’t get help because the doctors say. It can’t b acid because I’ve had Fundoplication. But I can’t even talk or drink something cold.. I start coughing then my air shuts off…but I’m coughing up food or anything I drink..
What do you recommend that I do? Or how do I go about talking to new doctor about this?
I’ve been on 3 different medication..plus all kinds of asthma medication..
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